Ranar Lahadin da ta gabata, 15 ga Fabrairu, aka yi bikin kumal Ranar Ciwon Yara ta Duniya. A sakamakon haka, an gudanar da al'amuran da yawa don fadakarwa da fadakar da al'umma mahimmancin wannan matsalar da kuma buƙatar saurin samun ingantaccen bincike da magani. Masana da dama sun yi amfani da damar wajen yin tir da karamin kasuwancin da ake da shi a cikin magungunan da aka kaddara don yakar cutar kansar yara saboda karancin abin da ke faruwa a cikin jama'a, wanda ya sa bincikensu ke da matukar wahala saboda rashin saka jari daga bangarorin gwamnati da masu zaman kansu.
A kowace shekara ana gano masu dauke da cutar kansa a cikin yara kanana guda 1.500 a Spain, cutar da a ƙasashe da suka ci gaba ita ce kan gaba wajen mutuwar jarirai daga cututtuka duk da ci gaban da aka samu a dabarun bincike da ingantacciyar rayuwa da aka samu da sabbin magunguna. Daga Spanishungiyar Mutanen Espanya Kan Cancer Ka tuna cewa kodayake har yanzu ba shi yiwuwa a hana cutar kansa a cikin yara, "Yana yiwuwa a inganta dabarun bincike da magunguna". A wannan ma'anar, ya kamata a lura cewa, a cewar Ma'aikatar Kiwon Lafiya ta Basque, fiye da kashi 70% na cututtukan yara ana warkar da su "Binciken asali da ladabi masu dacewa."
Gabatarwar «Jagora don Kulawa da Farko ga Ciwon daji a Yara da Matasa»
Daga cikin yawancin ayyukan da aka gudanar a Spain a yayin bikin ranar International Cancer of Cancer, yana da kyau a nuna gabatarwar Jagora ga Kulawa da wuri don Ciwon daji a Yara da Matasa, wanda Federationungiyar Spanishasashen Spain na Iyayen Yara da Ciwon Cancer (FEPNC) ta shirya, Spanishungiyar Kula da Ilimin ediwararru ta Sipaniya (AEP), Spanishungiyar Sifen ta ofungiyar Kula da Ilimin Yara na Farko (AEPAP) da Spanishungiyar Sifen ta ofungiyar Kula da Ilimin Jiki da Ilimin Jiki (SEHOP). Wannan jagorar, wanda ke tattara mabuɗan kulawa da ganewar asali game da ƙuruciya da cutar kansa ta yara, an yi shi ne musamman ga ƙwararrun masu kula da ilimin Firamare kuma ya haɗa da zane-zane tare da alamomi da alamomin manyan nau'o'in cutar kansa da ke shafar yara da matasa.
Wakilan cibiyoyi daban-daban sun zo daidai da nuna bukatar tura marasa lafiyar yara masu fama da cutar kansa zuwa sassan na musamman Ilimin ilimin kananan yara. Kamar yadda aka bayyana a taron manema labarai, cutar sankarar yara cuta ce da za ta iya fara bayyana da farko tare da alamunta iri ɗaya da sauran matakai na yau da kullun. Saboda wannan, yayin da yaro ko saurayi suka nemi shawara sau da yawa (misali, sau uku ko sama da haka) don alamun iri ɗaya ba tare da samun cikakken bayyani ba, Jagoran ya ba da shawarar a mai da su fifiko.
Pilar Ortega, shugaban FEPNC, ya tabbatar da hakan “Ganowa da wuri har yanzu batu ne da ke jiranta a kansar yara. Toin yarda da cewa cuta irin wannan na iya shafar yara kanana kuma ba su da kayan aikin da zai ba mu damar gano cutar kansa a farkon matakanta ya nuna bambanci tsakanin rayuwa da mutuwa ”. Wannan shine dalilin da ya sa, a cewar Ortega, "samun ladabi na gano wuri da wuri shine mafi kyawun magani game da cutar kansa ta yara."
Amma wannan ganowa ba mai sauki bane, kuma mafi kyawun masu lura da alamomin yara kanana iyayensu ne. A saboda wannan dalili, ɗayan shawarwarin da aka yi yarjejeniya a kai shi ne cewa ƙwararrun masu kula da ilimin Firamare (PC) suna yin la’akari da fahimta da ilimin ’ya’yansu da iyayensu ke yi yayin da za a ba da fifiko ga mara lafiyar. Ta wannan fuskar, Dr. Begoña Domínguez, shugaban AEPap, ya bayyana hakan "Mu ne mafi dacewar ƙwararru don, bisa ga bayanai daga iyalai da kuma gwajin asibiti na yara, don yin binciken farko da ake tsammanin kansar yara." Gaskiyar ita ce, 90% na yawan mutanen da ke ƙasa da shekaru 14 suna halartar shawarwarin yara na PC. "Kasancewar akwai yiwuwar wata cuta ko cuta, dole ne likitan yara na PC ya sami bayanai da kayan aikin da suka dace don bincikar sa da kuma bin sa da kuma bibiyar sa, bisa la'akari da kusanci da ruwa tare da likitan ilimin likitan yara", Dr. Domínguez ya kara.
Farfesa Luis Madero, shugaban Asusun Pediatric Foundation na AEP kuma shugaban kula da cututtukan cututtukan Onco-na Asibitin Niño Jesús (Madrid), ya nuna fa'idar wannan jagorar, bisa ga shaidar kimiyya, don kulawa da masu cutar kansa da wuri. , wani lamari mai matukar muhimmanci tunda “Zai tantance yadda cutar za ta kasance. Wadannan cututtukan ba su da yawa kuma alamun cutar ba takamaimai ba ne, wanda ke sa fitarwa ta zama da wahala kuma ana iya rikita su da cututtukan banki gaba daya ”.
Madero ya kuma ja hankali cewa wannan jagorar ya dogara ne akan wasu da aka buga a ƙasashe maƙwabta kuma misali ne na kulawa da haƙuri tare da kyakkyawar daidaituwa tsakanin Likitan Kula da Yara na Farko da na Musamman. Baya ga kulawa da wuri, wani ƙalubalen da wannan ƙwararren ya faɗi game da kula da yara masu cutar kansa shine lzuwa "sa hannun yara a cikin bincike na keɓaɓɓun jiyya ga yara masu haƙuri". A cikin wannan layin, makomar ilimin likitancin yara yana fuskantar bincike ne na musamman.
Ci gaban da aka samu game da cutar sankara
Rashin sha'awar kasuwancin kansar yara yana riƙe da bincike don warkar da dubban yara. Dole ne ku ji haushi! Da kyau, wannan labarin mai ban sha'awa yana ɗaya daga cikin kanun labarai wanda za'a iya karanta shi a cikin jaridu da yawa a ranar Lahadi.
Amma sa'a, akwai mutane da ke aiki tuƙuru don ba da bege. Wannan shine batun mutanen da ke aiki a Sashin Bincike na Clinical don gwajin lafiyar yara a cikin Onco-Hematology, wanda aka kafa ta CNIO da kuma Jariri Jesus Hospital (Spain), wacce ke ci gaba da kyakkyawan fata wajen neman sabbin magunguna.
Unitungiyar tana aiki da haɓaka samarwa da gabatarwa a fagen asibiti na sababbin hanyoyin kwantar da cutar kansar yara. Lucas Moreno, mai kula da sashin. ya bayyana cewa, da zarar layukan kula da lafiya sun ƙare, wannan Sashin yana ba marasa lafiya wasu hanyoyin warkewa a cikin gwajin asibiti, ba tare da buƙatar su bar Spain ba. Manufar ita ce don sauƙaƙe damar yin gwaji na asibiti a waɗancan lokuta waɗanda bayan amfani da magani na yau da kullun, cutar ba ta sakewa. Babban burin shine a inganta matsakaicin rayuwa na cutar sankara, wanda a halin yanzu yakai kashi 76%, da kuma neman jinyar wadanda suka fi jurewa (neuroblastomas ko sarcomas a matakan ci gaba da wasu nau'ikan ciwukan kwakwalwa ko cutar sankarar bargo) wanda guda huɗu ne kawai ke fita cikin yara goma sun rayu. "Marasa lafiya da ke faduwa a wajen matsakaita suna da rayuwa mara kyau kuma suna bukatar wadannan sabbin magungunan," Moreno yayi kashedi. “Ana bukatar karin jari. Gaskiya ne cewa muna ci gaba, amma bisa ga kokarin da yawa » duk da karancin sha'awar kasuwanci da ke sa "yana da matukar wahala a yi bincike mai inganci da inganci," in ji shi.