Kowane Nuwamba 13, da Ranar Huntington ta duniya. Wannan cuta ce mai saurin gaske, cututtukan ƙwayoyin cuta masu mutuwa waɗanda ke ci gaba a hankali kuma a hankali. Huntington na iya faruwa a cikin yara, ya bayyana a cikin shekaru goma na farko. Babu cikakkun bayanai kan yaduwar su, saboda ba kasafai ake samunsu ba.
Lokacin da cutar bayyana kanta a yarinta yayi daban zuwa lokacin da tayi hakan a cikin baligi, wanda ka iya haifar da rashin ganewar asali. Za mu magance wannan da sauran batutuwa a yau a cikin wannan labarin.
Ciwon Huntington na farkon yarinta
A matsayin cuta na Huntington yarinta ya fara Cutar Huntington an san ta cikin yara. Wannan ilimin lissafi yana da bangaren kwayoyin da mahimmanci sosai, zuwa irin wannan cewa a duk duniya akwai ƙira, a cikin wasu yankuna, tare da cikakkun iyalai cutar ta shafa.
Kodayake babu cikakkun bayanai, an kiyasta cewa farkon cutar Huntington, wanda ya hada da duk yanayin da cutar ta bayyana kafin shekara 20, yana shafar kusan 10% na marasa lafiya da wannan cuta, amma ba a san yadda yawancin wannan kashi suke da alamomi ba kafin su cika shekara goma. Da alama akwai dangantaka ta kai tsaye wanda yaduwar ke faruwa ta layin uba.
Abin baƙin ciki shine rayuwar yara tare da Huntington yawanci ba ya wuce shekaru 10 bayan fara bayyanar cututtuka. Kuma shi ne cewa a yau babu magani. A Amurka, mun sami labarin kwanan nan cewa FDA ta ba da sunan marayu marayu don branaplan, wanda ke rage matakan furotin na protein, kuma ya buɗe hanyar fata ga iyalai.
Alamun Huntington a cikin yara
Idan cutar ta bayyana kanta a yarinta, tana yin hakan ne da halaye daban-daban fiye da na manya. Da alamun farko a cikin yara yawanci sune:
- Canje-canje na hankali. Matsalolin neman ƙwarewa da ƙwarewar da ake ɗauka a matsayin mihimmiyya ga shekarunsu. Zai yiwu a sami gazawar makaranta ko asarar ƙwarewar da aka samu a baya.
- Rikicin ɗabi'a. Mafi yawan lokuta sune tashin hankali, halayyar ƙalubale, da haɓakawa. Saboda wadannan alamun, wani lokacin, idan ba a san tarihin iyali ba, za a iya samun rudani a cikin cutar kuma ana kula da ita a matsayin Ciwon Hankali na Rashin Kulawa (ADHD).
wasu ƙananan alamun bayyanar, amma hakan na iya tashi da wuri:
- Rashin kamuwa da cuta irin waɗanda ke faruwa a cikin mutanen da ke fama da cutar farfadiya.
- Matsaloli tare da kyawawan ƙwarewar motsa jiki.
- Rikicin Gait
Da yake cuta ce mai ci gaba yayin da cutar ta ci gaba za su tashi wasu, alal misali:
- Mage
- Rauni, rashin ƙarfi a gabobin hannu
- Motsa jiki mara izini
- Wahalar furta kalmomi
- Matsalar haɗiya
Akwai wani motsi wanda ba al'ada ba wanda ke nuna alamun cutar Huntington, an san shi da Koriya ta Huntington ba kasafai ake samun shi ba don bayyanar da cutar a farkon cutar. A cikin yara ya bayyana a matakan ci gaba, akasin abin da ke faruwa a cikin manya.
Shakan dangi idan akwai al'amuran Huntington
A cikin dangin da ke da tarihin cutar Huntington, akwai tambaya kan ko maye gurbi na iya shafar ci gaban zuriyarsu ta kowace hanya ko ma ta taso tun suna yara. Yawancin shari'ar Huntington ba sa bayyana a yarinta, kuma a wannan yanayin Iyalin za su ga cewa yaron yana da ƙuruciya daidai, ba za'a iya bambance shi da na sauran yara ba.
Koyaya, yana yiwuwa da yawa daga cikin waɗannan yara sun san ko sun girma a cikin gidajensu tare da memba wanda ke fama da cutar. Kuma wannan yana da sakamakon akan matakin motsin rai da rayuwar yau da kullun a cikin yaro.
Daga mahangar magunguna, akwai magunguna biyu da aka amince da su domin maganin chorea, amma mun riga mun yi tsokaci cewa chorea ba ita ce babbar alama a cikin yara masu fama da cutar Huntington ba. Bayan magungunan, ƙananan za a kula da su neuropsychologists, physiotherapists, maganganun kwantar da hankali da sauran ƙwararru waɗanda za su taimaka muku game da alamomin bayyanar cutar, kuma su ba da gudummawa don jin daɗinku.