Kamar yadda kowannensu 21 ga Disamba a yau ne Ranar Kasa ta Yara da Ciwon Sankara. Wannan shirin an haife shi ne ta Federationungiyar Iyaye ta Spanishan Spain da ke Ciwon Cutar Cancer. A Spain, cutar sankarar yara tana shafar kimanin 1.100,ananan yara XNUMX a kowace shekara. Labari mai dadi shine cewa yawan mace-mace sankarau yana da sauki. Akwai yawan rayuwa bayan shekaru 5 na jiyya kusan 80%, kuma ya kai 100% a wasu takamaiman nau'ikan ciwace-ciwacen.
Waɗannan bayanan an bayar da su ne ta Babban Kwamitin Kwalejin Magungunan Magunguna, wanda aka buga a cikin takaddarsa Magani na Magunguna 148. Rahoton ya bincika bangarorin asibiti da kuma kula da mafi yawan ƙwayoyin cuta a cikin yara, ban da sabunta aikin kiwon lafiya na kwararren likitan magunguna.
Matsayin likitan magunguna wajen maganin cutar kansar yara
Matsayin likitan magunguna shine ba da gudummawa ga ingantacciyar rayuwa ga waɗannan marasa lafiya. Masanin harhaɗa magunguna yana ba da gudummawa ga ilimin yara da kuma danginku tare da cutar sankarar bargo da lemomi a fannoni kamar cin abinci, tunda wasu magunguna da cutar kanta na iya haifar da rashin abinci mai gina jiki. Ciwon Hematologic da waɗanda ke cikin jijiyoyin jijiyoyin jiki sune na kowa dangane da cutar kansa ta yarinta. Kimanin kashi 50% na yara 'yan ƙasa da shekaru 15 da ke fama da cutar kansa suna da cutar sankarar bargo.
A farkon ganowa, likitan magunguna aboki ne, tunda farkon fara magani ga cutar sankarar bargo da cutar sankarau yana yanke hukunci. Wasu daga cikin jajayen tutoci da likitan magunguna zai iya ganowa Su ne: zazzabi wanda ba a san asalinsa ba, raunin nauyi ko alamar asthenia ba tare da wani dalili ba, ƙonewa ba tare da wani dalili da aka gano ba, kumburin lymph node, ko bayyanar "lumps" ...
Suna kuma taimakawa rage haɗarin kamuwa da cuta, nacewa kan matakai kamar su wanke hannu, shayarwa, motsa jiki da matsakaiciyar motsa jiki da kuma guje wa cincirindon mutane a cikin kewayen yanayi. A lokacin gudanar da jiyya, kamar yadda ake amfani da magunguna daban-daban, aikin likitan magunguna yana da mahimmanci don yin kulawa da sa ido kan magunguna, musamman game da hanyoyin CAR-T.
CAR-T hanyoyin kwantar da hankali, ci gaba a maganin kansar yara
Bayyanar da ake kira hanyoyin kwantar da hankali na CAR-T don kula da cutar sankarar bargo da cutar sankarau tana da yawa. Wannan nau'in magani, saboda rikitarwarsa, yana sanya shi mahimmanci ga haɗin gwiwa tsakanin kantin asibiti da kantin magani na gari, don inganta kulawar asibiti da ci gaba da kulawa da yara.
Bincike a cikin filin na Oncology, da kuma musamman a yara Oncology, an samar da muhimmanci ci gaba. LCAR-T far wani nau'i ne na rigakafin rigakafin da ake amfani dashi dangane da canjin yanayin kwayar halittar lymphocytes. Waɗannan su ne ƙwayoyin da ke da alhakin daidaita tasirin garkuwar jiki. Manufar ita ce a gare su su iya gane ƙwayoyin kansar a matsayin baƙi kuma su lalata su.
A Spain Cibiyoyin farko don inganta wannan dabarun a cikin marasa lafiyar yara sune Asibitin Asibiti da Sant Joan de Déu a Barcelona. A watan Yunin 2020, Asibitin Jami'ar La Paz, ta hanyar Sabis na Hemato-Oncology Service, ya ba da rahoton cewa ya sallami mai haƙuri na farko da aka kula da shi a cikin ofungiyar ta Madrid tare da ƙwayoyin CAR-T, wani ɗan shekara 11 tun yana da shekaru.
Aikace-aikace a hidimar iyalai
Silvana Briones, dalibi a Jami’ar mai zaman kanta ta Madrid (UAM) ta samu tallafin karatu don bunkasa aikin hadin kai don wayar da kan yara kanana da kansar matasa, wanda ya hada da taimakon kwakwalwa ga wadanda ke fama da shi. Ya game da aikace-aikacen hannu na Mi RiquezAPP. Wannan ra'ayin yana da zuriyarsa a cikin aikin Riqueza de Vivir, wanda gonungiyar Yara ta Cangon ta Aragon ke gudanarwa.
Initiativeaddamar da Silvana Briones, ɗalibar Biochemistry, ta kasance ɗaya daga cikin waɗanda suka ci nasarar makarantar Kwalejin Fordalubalen Communityalubale ta tallafawa. Aikace-aikacen zai samar da abubuwan sha'awa game da cutar sankarar yara, shaidu daga marasa lafiya da dangi. Bugu da kari, tana da bangaren kimiyya da tattaunawa da masu bincike. Da shi kake samun damar a cibiyar sadarwar masu sa kai wadanda ke ba da taimako na musamman ga marasa lafiya da danginsu.
da fa'idodi daga aikace-aikacen hadin kai zai koma ga kungiyoyin masu fama da cutar kansa. A cewar wanda ya kirkiro wannan ra'ayin, makasudin shine bayar da sabis na taimako na kwakwalwa, wanda yake da goyon baya daga Gidauniyar da ke da Cancer.