Yau, 17 ga watan Agusta, ita ce Ranar Duniya ta Coats cuta, Wataƙila ba ku taɓa jin labarin wannan cuta mai saurin ba, wanda a Spain ke shafar ɗaruruwan iyalai, kuma wane ne alamun farko suna faruwa a yarinta.
Kwayoyin cuta cuta samar da wani ci gaba da asarar gani gabaɗaya yana shafar ido ɗaya ne kawai. Tsarin aiki ne na yau da kullun wanda ya fara tun yarinta da ƙuruciya, kuma yana ci gaba a hankali da kuma ci gaba, har sai ya haifar da asarar hangen nesa gaba ɗaya. Koyaya, akwai magunguna wadanda zasu iya tasiri kuma wani lokacin yakan faru cewa cutar ta tsaya da kanta.
Menene cutar Coats kuma wanene ya fi shafa?
Coats cuta, kamar yadda muka fada ba safai ba, don haka se la'akari da rare. cuta ce na yau da kullum (yana da dogon karatu na dogon lokaci), ci gaba kuma sau da yawa unilateral wanda ke shafar kwayar ido.
Yana shafar maza sun fi mata yawa, amma ba a gano ƙungiyoyin haɗari ba kuma babu sanannen zaɓi don launin fata ko na gefe. 80% na marasa lafiya sun riga sun bayyanar cututtuka kafin shekaru 10. Alamun asibiti na farko sun fara faruwa tsakanin shekaru 6 zuwa 8. Masu binciken sun yanke hukuncin cewa cuta ce ta gado, duk da haka ba a san asalin ta ba.
Kwayar cutar gabaɗaya ta ƙunshi rashin hangen nesa tunda cutar takan shafi ido daya ne kawai. Yana samar da strabismus kuma a cikin matakai masu ci gaba, raunin ido. Koyaya, da farko yana iya zama asymptomatic tunda yara masu fama da asarar hangen nesa ba sa yawan gunaguni, amma suna dacewa da irin wannan hangen nesa. Gaskiyar cewa akwai fitarwa mai rawaya ta bayyane ta hanyar bincika ido tare da ophthalmoscope yana daya daga cikin cututtukan da suka banbanta shi da leukocoria. Lokacin da waɗannan abubuwan shafar suka shafi ɓangaren tsakiya da mafi saurin jijiyar ido, asarar ƙarfin gani yana da mahimmanci. Zai iya haifar da cutar kumburin macular.
Nagari magani
Akwai magani don cutar Coats, wanda ya dogara da canjin yanayin cutar da wuri da girman raunuka a cikin tantanin ido. Abinda akasari akeyi shine aikace-aikacen laser akan kwayar ido ko muryar kuka, domin lalata raunuka ta sanyin.
Ana ba da magani ga rufe tasoshin idanuwa mara kyau tare da asara don sauƙaƙe sassaucin fitarwa da sakewa. A mafi yawan lokuta, fiye da 70%, daidaitawa tare da wannan maganin, kodayake fitarwa da ƙyallen fata suna daidaita hangen nesa.
A cikin al'amuran da suka ci gaba bukatar dabarun tiyata kamar sake sanya ido a ido. Cutar cututtukan fata wani lokaci yana da wahalar banbanci daga retinoblastoma, wani nau'in sankara mai saurin kamuwa da cututtukan fata. Kuma abin mamaki, duk da cewa cuta ce ta yau da kullun, a wasu lokuta ci gaban cutar yana tsayawa da kansa ba tare da magani ba.
Afece, ofungiyar 'yan uwa da marasa lafiya tare da Coats a Spain
A Spain, tun daga 2016 akwai AFECE, ofungiyar 'yan uwa da marasa lafiya tare da Coats a Spain wanda ke zaune a Yuncos, karamar hukumar Toledo. Wannan ƙungiyar, wacce ta fito kamar ta mutane da yawa a Spain, saboda ƙwarewar wasu iyayen da abin ya shafa, an yi rajista a cikin ofungiyar Rashin ofarfin Cututtuka, FEDER.
A cikin gajeren tarihinsa, AFECE ta gudanar da kamfen daban-daban na wayar da kai ta hanyoyin sadarwar ta ga wayar da kan jama'a game da wannan cuta mai saurin gaske da inganta binciken kimiyya. Bugu da kari, daya daga cikin aiyukanta, dalla-dalla akan shafin yanar gizon, shine kokarin hada kan al'amuran da suka kamu da cutar Coats, ba da murya ga duk wadanda abin ya shafa, tare da sanar da gwargwadon yiwuwar marasa lafiyar da danginsu.
Wannan ƙungiyar ta kasance bayar da kyaututtuka daban-daban. Kuna iya bin ta kan hanyoyin sadarwar ta, ko bincika labarinta da bayar da gudummawa ta gidan yanar gizon.