ICystic Fibrosis sesinye sezifo zemvelo ezixhaphakileyo kwilizwe lethu. Namhlanje lusuku lwehlabathi lwesi sifo sinqabileyo, kwaye, ngenxa yemeko yesifo, besifuna ukwazi ukuba i-COVID-19 ibachaphazela njani abantwana, kunye nabantu abadala. Kungenxa yokuba kubantu abane-CF, ukosuleleka kuso nasiphi na esinye isifo, esinempembelelo kwinkqubo yokuphefumla, ngakumbi yingozi.
Usulelo lwe-COVID-19, apho sisazifumana sikuyo, lenza inkxalabo ekhethekileyo kwiqela labantwana, kunye neentsapho ezinamalungu achaphazelekayo yiCystic Fibrosis. Ngendlela, ukusukela nge-7 kaSeptemba ikhona Izigulana ezingama-33 ezine-CF kunye ne-COVID19. Apho bali-10 abamkelweyo, kwabangama-33 abosulelekileyo, abali-11 bangaphantsi kweminyaka eli-18 ubudala.
Iingcebiso ngokubanzi zabantwana abaneCF
ICF ngu isifo esimbaxa, que ichaphazela ngokwahlukileyo umntu ngamnye ophethwe yiyo, ke kungcono ukuthetha ngqo neqela lokhathalelo lweCF kwaye ubuze nayiphi na imibuzo onayo malunga nempilo yabantwana bakho kunye nosapho lwakho.
Kukho ubungqina bokuba abantu, abantwana, abaneemeko esele zikho ezifana nezifo zemiphunga, baqhuba a Umngcipheko okhulayo wokugula kakhulu kwi-COVID-19 kwimeko yosulelo. Zombini i-Spanish Federation kunye ne-North American Federation zikhuphe amaxwebhu abanzi ngoJulayi ngothotho lweengcebiso.
Njengengcebiso eziphambili siphakamisa: isitokhwe sibonelele kwaye sihlale ekhaya kangangoko kunokwenzeka. Ukuzikhusela. Kwaye uthathe amanyathelo okhuseleko emihla ngemihla ukugcina umgama okude kwabanye, ukunciphisa umda kufutshane, kunye nokuhlamba izandla rhoqo. Enye ingcebiso kukwenza ukuzilolonga ngaphandle, Ngexesha lokuphakama kweeyure, ubuncinci kathathu ngeveki. Kwaye, xa inkwenkwe okanye intombazana ifikile, ikhaya kufuneka lenze ukucoca izihlangu, ukutshintsha kweempahla kunye nococeko lomntu. Ayisiyomntwana kuphela kodwa ikwangamaqabane.
Zithini iinkcukacha-manani malunga neCystic Fibrosis kunye ne-COVID-19?
Umntwana oneCystic Fibrosis ukhohlela rhoqo, ukuba uyakuqaphela oko unyana wakho ukhohlela ngokwahlukileyo, unobunzima bokuphefumla okanye obuhlungu bemisipha, ngoko nangoko thetha neqela elikujongileyo. Ezinye iimpawu zezi umkhuhlane ophezulu, Ukuphulukana kakhulu nomdla wokutya, ukugabha okanye urhudo, okanye ukuba ulahlekelwa livumba okanye incasa.
Ngokubanzi, impendulo yabantu abosuleleke yi-COVID-19, abaphethwe yiCystic Fibrosis, baphendula kakuhle. A Ipesenti encinci kakhulu ingeniswa, kwaye uninzi luye lwachacha ekhaya.
Abo nabantwana kunye nabantu abadala wafakelwa Kwaye bathatha amayeza acinezela amajoni abo omzimba ukuthintela ukwaliwa kwamalungu. Basemngciphekweni omkhulu wokufumana kunye nokugula kakhulu kwi-COVID-19.
Abantwana abaneCystic Fibrosis esikolweni
Ukubuyela kwigumbi lokufundela sisigqibo esinzima kubo bonke abazali ngeli xesha, ngakumbi ukuba yinkwenkwe okanye intombazana eneCystic Fibrosis. Yi isigqibo sobungozi, kodwa sinezibonelelo, ukuba yenziwe ngokuchanekileyo, yenzelwe umfundi kunye nosapho. Amakhwenkwe kunye namantombazana baneemfuno ezithile zentlalo kunye neemvakalelo, kwaye ukufunda ubuso ngobuso kuyabanceda ngokudityaniswa ngokuchanekileyo.
Eyokuqala yile thethana kwaye uyivavanye kunye neqela leCandelo leCF. Kuyimfuneko ukuba kuthathelwe ingqalelo inqanaba lokuchaphazeleka, imeko yezonyango, indawo yokuhlala, iimpawu kunye nomthamo wesikolo ukulandela imigaqo emiselweyo. Sikucebisa Nxibelelana nesikolo ukwazi ukuba zeziphi iindlela abazicingileyo ngonyana okanye intombi yakho.
Izindululo zezi: amaqela amancinci ebhabhu, amagumbi okufundisela angena umoya, ukuhamba kude, ucoceko lwezandla rhoqo emva kweeyure ezi-1 okanye ezi-2, indawo zokucoca ubuncinci amaxesha ama-2 ngemini kwaye ukusuka kwiminyaka emi-3 kwiqela lethu ukusebenzisa imaski (FFP2 / KN95 okanye uqhaqho kuxhomekeke unyamezelo). Kodwa esi sicwangciso masingaphunyezwa kumagumbi okufundisela kuphela, kodwa Kuzo zonke iimeko umntwana ukuyo, ezothutho, iintlanganiso zasemva kwesikolo, ukuzonwabisa ...