Namhlanje u-Agasti 17 uphawula uSuku lweHlabathi lwe- Isifo seengubo, ngekhe uve ngesi sifo sinqabileyo, eSpain sichaphazela amakhulu eentsapho, kwaye ngubani Iimpawu zokuqala zivela ebuntwaneni.
Isifo seengubo sivelisa i- inkqubela phambili yokuphulukana nombono ngokubanzi ichaphazela kuphela iliso elinye. Yinkqubo engapheliyo eqala ebuntwaneni nasebusheni, kwaye ikhule kancinci kwaye iqhubeke, ide ivelise ukulahleka okupheleleyo kombono. Nangona kunjalo, lukhona unyango olunokuthi lusebenze kwaye ngamanye amaxesha kwenzeka ukuba esi sifo siyeke sodwa.
Yintoni isifo seengubo kwaye sichaphazela bani ikakhulu?
Isifo seengubo, njengoko besitshilo sinqabile, kunjalo se cinga inqabile. Sisifo ezingapheliyo (ezinekhosi yexesha elide), eziqhubela phambili kwaye zihlala zingahlangani echaphazela i-retina.
Ichaphazela amadoda kunabafazi, kodwa amaqela omngcipheko akachongwanga kwaye akukho kwaziwa kwangaphambili ngokobuhlanga okanye emva kwexesha. I-80% yezigulana sele zikhona iimpawu ngaphambi kweminyaka eyi-10. Iimpawu zokuqala zeklinikhi zenzeka phakathi kweminyaka emi-6 ukuya kweli-8. Abaphandi banqume ukuba sisifo esifa, nangona kunjalo imvelaphi yaso ihlala ingaziwa.
Iimpawu ngokubanzi zibandakanya ukulahleka kombono ongakhethiyo kuba esi sifo sihlala sichaphazela iliso elinye kuphela. Ivelisa i-strabismus kunye nakwizigaba eziphambili, i-retinal detachment. Nangona kunjalo, ekuqaleni kunokuba yinto ebonakalayo kuba abantwana abane-unilateral umbono wokulahleka abahlali bekhalaza, kodwa beziqhelanisa nolu hlobo lombono. Inyaniso yokuba kukho i-exudates etyheli ebonakalayo ngokujonga iliso nge-ophthalmoscope yenye yeendlela ezimbi ezizahlula leukocoria. Xa ezi exudates zichaphazela icandelo eliphakathi nelinovakalelo ngakumbi kwiretina, ukulahleka kwamandla okubonakalayo kubaluleke kakhulu. Ingakhokelela kwi-edema ye-macular.
Unyango olucetyiswayo
Kukho unyango lwesifo seengubo, esixhomekeke kwinqanaba lokuvela kwesi sifo kunye nendawo kunye nobungakanani bezilonda kwi-retina. Into eqhelekileyo eyenziwa yile isicelo laser Kwi-retina okanye kwi-cryotherapy, ukutshabalalisa izilonda ngengqele.
Unyango lujolise kwi Ukuvalwa kweenqanawa ze-retina ezingaqhelekanga kunye nelahleko ukuququzelela isisombululo se-exudation kunye ne-retina detachment. Kwiimeko ezininzi, ngaphezulu kwama-70%, uzinze kolu nyango, nangona exudation kunye ne-macular scarring compromise vision.
Kwiimeko eziphambili kakhulu kufuna ubuchule bokuhlinzwa njengokuphinda kubekwe iretina. Isifo seengubo ngamanye amaxesha kunzima ukwahlula kwi-retinoblastoma, uhlobo olunqabileyo lomhlaza ochaphazela izicubu. Okumangalisayo kukuba, nangona sisisifo esinganyangekiyo, kwiimeko ezithile inkqubela yesi sifo iyayeka ngaphandle kwonyango.
I-Afece, uMbutho wamalungu osapho kunye nezigulana ezineengubo eSpain
E-Spain, ukusukela ngo-2016 kukho I-AFECE, uMbutho wamalungu osapho kunye nezigulana ezineengubo eSpain ezinze eYuncos, umasipala waseToledo. Lo mbutho, ovele njengabaninzi eSpain, ngenxa yamava abanye babazali abachaphazelekayo, ubhalisiwe kwi-Federation of Rare Diseases, iFEDER.
Kuyo yonke imbali yayo emfutshane, i-AFECE yenze imikhankaso eyahlukeneyo yokwazisa ngothungelwano lwayo lwentlalo ukuya yazisa uluntu kwesi sifo sinqabile kwaye uqhubekeke nophando lwenzululwazi. Ukongeza, omnye wemisebenzi yayo, echaziweyo kwiwebhusayithi, kukuzama ukudibanisa iimeko ezichongiweyo ukuba zinesifo seCoats, ukunika ilizwi kubo bonke abo bachaphazelekayo, ukwazisa kangangoko kunokwenzeka izigulana kunye neentsapho zazo.
Lo mbutho ubukho zinikwe amabhaso ezahlukeneyo. Unokumlandela kwinethiwekhi yakhe, okanye ufumane ngeendaba zakhe kwaye wenze igalelo kwiwebhusayithi.