Njengazo zonke ii-30 zikaMeyi sifika USuku lweHlabathi lweSikrolo esiNinzi kwiHlabathi. Umbutho kunye nemibutho iqhuba uluhlu lwezenzo ukuze kubonakale into ebizwa ngokuba yisifo sobuso bewaka. Kule meko, kwaye nangona kwiindawo ezininzi zaseSpain kwisigaba se-2 sokunyuka, isigqibo senziwe ukuba singabambisi nawuphi na umcimbi kawonkewonke.
Umxholo ongundoqo walo nyaka, noya kuqhubeka iminyaka emibini eyongezelelweyo, ngulo: Uqhagamshelwano lwe-EM. Ngesi saci sifuna ukunika udumo olukhulu kwiimfuno zentlalo zabagulayo kunye neentsapho zabo. Ungayifumana kwi-intanethi nge-hashtag #EMConnections, okanye uyikhangele ngokudibanisa, sidibanisa.
I-Multiple sclerosis yophula imiqobo
Njengoko sitshilo ngasentla, imigca emithathu yoqhagamshelo lwe isifo sokugubhuka Ngaloo mini, baya edolophini uluntu, uqhagamshelo lobuqu, kunye noqhagamshelo kukhathalelo olusemgangathweni. Iingcali ze-Neurologists ziyavuma kwaye zigxininisa ukuba, zikhokelwa ngoogqirha, amalungu osapho yesigulana ngabo bafanele bathabathe amanyathelo ayimfuneko okuphucula ukwamkelwa kwesi sifo nokugcina umgangatho wobomi besigulana.
Enye yeenjongo eziphambili zomhla wama-30 kuMeyi, 2020 kukucela umngeni kwimiqobo yentlalo kunye nebala elinokwenza abantu imultiple sclerosis uziva ulilolo kwaye ulilolo ekuhlaleni. Namhlanje lithuba, esingafuni ukuliphosa, ukufuna iinkonzo ezingcono, ukuxhasa amanethiwekhi kunye nokukhuthaza ukuzinyamekela.
Nangona kungekho ziganeko zomzimba ezicwangcisiweyo, zikhona imisebenzi eyahlukeneyo kwiintanethi zentlalo, iinkomfa ze-intanethi, ubungqina, amabango, kubandakanywa nezo zinxulumene ne-coronavirus, kunye nokulahlekelwa komgangatho wobomi, kwezinye iimeko, ngenxa yobhubhane.
Uthungelwano lwenkxaso lubalulekile
Ukwakha uluntu oluxhasayo ezinceda izigulana ze-multiple sclerosis, kodwa nabahlobo kunye nosapho lwabo abachatshazelwa sesi sifo kubalulekile. ESpeyin, kuyo yonke imibutho ukuya kwinqanaba elikhulu okanye elingaphantsi, kuxhomekeke kumthamo ngamnye, uncedo lwengqondo kunye nentlalontle lunikezelwa kwiintsapho.
Kukho izenzo zesiko ngeentswelo zentsapho nganye, yaye kukwakho namaqela enkxaso ekwabelwana ngawo amava. Ngolu unyango, inkqubo yokulungelelanisa isifo iququzelelwa, zombini isigulane, ukuphucula umgangatho wobomi babo, kunye nentsapho kwimeko entsha.
La Ukuqwalaselwa kwengqondo kwiintsapho, kubanonopheli, yimfuneko engabandakanywanga kwizicwangciso zonyango zomntu ogula ngeMultiple Sclerosis. Inkxaso yosapho ibalulekile kubantu abanesifo se-neurodeergenerative, kwaye akukho mntu ujongana nayo yedwa.
Iimvakalelo zeentsapho zabantwana abane-MS
Ngaphandle kwamathandabuzo, umntu ofunyenwe ene-multiple sclerosis ngoyena uchaphazelekayo. Kodwa ngomlinganiselo omkhulu okanye onganeno kuyo yonke imekobume yabo iyaphazamiseka. Sisifo sexesha elide. Phakathi kwe-3 kunye ne-10% yabantu abafunyaniswayo ngabantwana okanye abafikisayo. I-35% yabantwana abafunyaniswa bengaphantsi kweminyaka eyi-10 ubudala kwaye babenokulahlekelwa ngumbono ngokupheleleyo okanye inxalenye yabo njengophawu lwabo lokuqala.
Into yokuqala abazali abavakalelwa kukuba banetyala, Kutheni mna? Akukho nto yenziwe ngabazali okanye abasilela ukuyenza ukuze kwenzeke le meko. Amaqela enkxaso akhapha inkqubo yokulila, kunye nezigaba zayo, de yamkelwe. Kwaye ngelo xesha, kwixesha elizayo, aba bazali baya kukhapha izalamane, abantwana, ootatomkhulu.
La usapho luya kuba yeyona nkampani ilungileyo yomntwana, iqabane elingcono kakhulu lokubambelela kunyango kwi-multiple sclerosis. Kodwa kwangaxeshanye iya kuba yeyona itsala nzima kakhulu. Yiyo loo nto kubaluleke kakhulu ukukhathalela abanonopheli, kwaye ukhuthaze la maqela axhasanayo.
Ngaphandle kokuwela kumathemba obuxoki, isigidimi siyakha. I i-multiple sclerosis inonyango, nangona isisifo esinganyangekiyo. Inkqubela phambili yezenzululwazi iya ikwenza oku kusebenze ngakumbi.