Maererano ne World Health Organization, Kuchengetedza "kunovandudza hupenyu hwevarwere uye mhuri dzinosangana nezvirwere zvinotyisidzira". Iwo marapiro uye kupindira kunoderedza marwadzo uye zvimwe zviratidzo, uye kunopa rutsigiro rwepfungwa. Mune ino yekupinda yeEl Confidencial, tinoverenga humbowo hweElisabet, ane mwanasikana ane makore gumi nerimwe ekuberekwa akarasikirwa neupenyu muna 11. Aive nechirwere chisingawanzozivikanwa chinonzi Rett syndrome, uye mwedzi mushure mekugamuchirwa kwekupedzisira muchipatara, akapinda muchirongwa chekupora sezvo pakanga pasina mhinduro; Paakafema kekupedzisira, akazviita nemhuri yake, kumba.
Gwaro kubva Ministry of Health, Zvemagariro Services uye Kuenzana, inozivisa kuti kurapwa kwakapora kwevarwere vanozvida ikodzero inozivikanwa nemasangano epasi rese; uye mutemo wechiSpanish unotsanangurawo hutano hwakadai. Pane zvinokurudzirwa padanho reEuropean, rakaunganidzwa muNational Plan yePalliative Kuchengeta, iyo ine yayo budiriro. Mukufunga ipapo, "Kuchengetwa kwemurwere anorwara kunovimbiswa." Ndizvo zvazvakaitawo nevana here?
Sergio del Molino ndiye muvambi wechikumbiro papuratifomu yeruzhinji Shanduko.org, rine zita rekuti "Vana vane kodzero yekufira kumba vasina kunzwa kuraswa # kutarisirwa". Kwakatangira chiitiko ichi kwaive kufa kwemwanakomana wake Pablo, aingova nemakore maviri chete, uye airwara neleukemia. Nzvimbo yakanakisa pasi rose yekushandisa mazuva ake ekupedzisira ehupenyu yaive imba yake, yeizvozvo handina mubvunzo; Asi mhuri payakasiya chipatara, uye sezvakataurwa muchikumbiro, vakatarisana nemarwadzo emwana ari ega, sezvo pasina timu inodzora yakavashanyira.
Munyika medu mune mashoma maAutonomous Communities ayo anopa sevhisi, mukuita chete Murcia uye zvinongedzera zvipatara muMadrid kana Catalonia; uye munyaya yaNiño Jesús (Madrid) ichokwadi nekuda kwemari yega. Nekudaro, kunze kwekuchipatara kurapwa kwepamoyo hakushandiswe munzvimbo zhinji.
Kuchengetwa kwevana kwehutano hwemuviri, pfungwa nemweya wemwana, kupawo rutsigiro kumhuri (Ministry of Health), asi kana pasina chishuwo chezvematongerwo enyika chekucherechedza kodzero yekuvagamuchira pamba, nerutsigiro ruzere kubva kuhutano system, mhuri dzinounza vana vavo kumba mumazuva avo ekupedzisira kana mavhiki ehupenyu, kurapwa kwakakodzera uye kutarisirwa hazvivimbiswe. Shanduko yemafungiro inodiwa, nekuti kunyangwe mushonga wakanangana nekuchengetedza hupenyu, hazviwanzo kuitika; Kodzero yekufa zvine chiremerera mukambani yevanodiwa, uye pasina kurwadziwa, iriwo Kodzero (mumavara makuru) evarwere vevana vari mumamiriro akaipisisa.
Chii chinonzi kurapwa kwevana?
Ivo vanozivikanwa nekushanda kune dzakasiyana siyana hosha (oncological, neurological, matambudziko nekuda kwekutanga kusachena, nezvimwewo). Zvirwere izvi zvakapatsanurwa kuita mapoka mana pakati pekutyisidzira mamiriro asi nekugona kwekurapa kurapwa; isingadzoreke; inoda nguva refu yekurapa kwakasimba kuchengetedza hupenyu; uye inofambira mberi isina sarudzo dzekuporesa. Huwandu hwezviitiko zvevana zvinoda kuchengetwa uku hwakadzikira kana zvichienzaniswa nevanhu vakuru vanozvida; Izvo zvinofanirwawo kutariswa kuti vana vadiki vari kusimukira, izvo zvinokanganisa chaiwo maficha ekutarisira.
Zvimwe zvekugadzirisa zvinhu izvo ino tarisirwo yehutano inosanganisirwa nazvo kubatanidzwa pamoyo, kuve nzvimbo nyowani yeruzivo, kana kushomeka kwekuwanika kwemishonga. Kune rimwe divi, kusawirirana mutsika kunogona kusimuka, sezvo vabereki vari ivo vane basa, chishuwo chemwana uye / kana kutora chikamu kwavo hakungatariswe. Chinyorwa chebazi rezvehutano chinoratidza iyo inoda kuziva iyo 'tipping poindi' kubva iko iko kutarisirwa kunodiwa kuchave kurapa kwakapora.
Icho chokwadi chakasimba uye chinosuruvarisa.
Hapana mubereki akagadzirira kufa kwemwana wake, nekuti vanaamai nemadzibaba VANOPA hupenyu: chinhu chechisikigo ndechekuti vana vedu vanotirarama. Muzviitiko izvi zvezvirwere zvinotyisidzira hupenyu uye zvisingaregerere, Hutano hwedu hunosangana nechokwadi icho pane zviitiko zvakaita saPablo, baba avo (Sergio) ane mune blog blog ye Shanduko sepashure pekunge vaneta chemotherapy uye mamwe marapirwo, kuwedzera pakuiswazve mwongo wemapfupa, ivo vakapinda musimba mukubudazve kweleukemia. Sarudzo yekudzosera mwana kumba kwake inoita senge inonzwisisika, uye mushonga zvakare unoreva kuchengetwa, nei zvino mhuri iyi yakanzwa kuraswa zvakadaro munguva dzakaomarara kudaro?
Kutarisira kurwadziwa: mubvunzo wakakosha.
Pawebsite yeC SECPAL, pane ruzivo runonakidza pamusoro penyaya iyi: Zvirwere zvekupedzisira zvinowanzo kuve nekurwadziwa, izvo nekuwedzera kune kwayo kusagadzikana, kunokonzera kusagadzikana, kukanganiswa kwekurara kana kushaya chishuwo. Dzimwe nguva kurwadziwa uku hakuna kukosheswa nekuda kwekuchengetedzwa kwekukanganisa kwakadai sekutadza kwemwana kuzviratidza kana kushaya ruzivo.
Iwo rugwaro rwechikumbiro mu Shanduko runopera seizvi:
“Ndosaka ndichikumbira siginecha yenyu kuti mubvunze bazi rezvehutano pamwe nevevanhu vanozvimirira kuti vashande pamwe kuti vabatanidze nekuwedzera mabasa ekurapa kwevana. sekodzero kune chero mwana ane vabereki vanozvikumbira, zvisinei nekuti vanogara kupi. Ndinoziva kuti tinogona kuzadzikisa izvi, nekuti nekuda kwezvikumbiro zvatotanga papuratifomu, kufambira mberi kuri kuitwa mune dzimwe nzvimbo zhinji dzehutano. Isu tinongoda rutsigiro rwese runogoneka ”.