Childhood is a time of great dedication for children to they can live it how they deserve, with freedom and joy. Children diagnosed with hemophilia are those cases in which once their disease is diagnosed they can live like any child, but following a series of guidelines.
Hemophilia in childhood It exposes children to bleeding anywhere on their body and this limits them to certain daily activities. In fact, it can even suffer internal bleeding affecting the central nervous system and other places such as the urinary tract or the oral mucosa or nasal cavities, which if left untreated can cause fatal events.
Tips for Families of Children with Hemophilia
These children diagnosed with hemophilia have the absence or failure of a protein that helps blood clot,. That is why they may have uncontrolled bleeding. This sickness It produces pain, inflammation and children have somewhat more limited mobility in their activities, so they must follow a series of care:
- Already from babies they can be diagnosed. To begin with, the use of a pacifier is not usually recommended since with it they can easily bite their lips Already when they begin to walk attention and vigilance has to be extreme.
- Make sure that all toys are soft and have rounded edges. Never let him pick up sharp or heavy objects so that they do not cause damage. Vigilance is exhausting, since you have to be even aware of all your movements at home, especially if there are stairs or windows nearby. One recommendation is to place rugs or rugs that are cushioned against possible falls.
The locker room of a child with hemophilia
- All those garments that may contain accessories that can rub against the child's skin. Buckles, zippers or buttons can cause injury and it is best not to wear it.
- The clothes if possible much better that is padded. It's a good idea to put foams around joints like knees or hips for potential fatal blows.
- Act quickly. avoid the pants that can fit long or skirts so as not to stumble. Likewise, dangling elements and shoelaces should be avoided. It is advisable wear boot-type shoes, so that your feet are much better supported and have more stability is your ankles for possible falls.
- As the child grows, you have to make him responsible for his actions and know how you have to react or detect if you have a sign of bleeding. It is vitally important in case other people outside the family cannot recognize these signs.
Recommended diet and sports
Sport is recommended As long as you can practice it adapted to your needs. We already know that children with this type of pathology must stay for long periods of time and that is not good for having healthy bones and muscles. That is why the sport practiced, even if it is always softer help you strengthen muscles, bones and joints and always with their corresponding protections such as helmets, elbow pads or knee pads.
The diet must be healthy, it does not have to be special or eliminate anything from your diet. What can be emphasized is rich foods iron, such as red meat, poultry and legumes. Vitamin K it is also important that it is present in their diet. We can find that in vegetables such as broccoli, spinach or Brussels sprouts.
When a child with hemophilia begins to know how to take responsibility for his body, he must be fully aware of all the signs of these recurrent hemorrhages. Will have to know how to detect a bump or stumble it has not been good and if there is going to be a localized heat or tingling or if you have to press where you have received the impact. Any responsibility on the part of all the people around a person with hemophilia will always be good, so as not to expect a worse prognosis.