NgeCawe ephelileyo, ngoFebruwari 15,l Usuku lweHlabathi loMhlaza loMntwana. Ngenxa yoko, uninzi lweziganeko lubanjiwe ngenjongo yokwazisa kunye nokwenza uluntu lwazi ngokubaluleka kwale ngxaki kunye nesidingo sokufikelela ngokukhawuleza kuxilongo olufanelekileyo kunye nonyango. Iingcali ezininzi zithathe ithuba lokugxeka inzala encinci kwezorhwebo ekhoyo kumachiza enzelwe ukulwa nomhlaza wobuntwana ngenxa yeziganeko zabo eziphantsi kubemi, besenza uphando lwabo lube nzima kakhulu ngenxa yokunqongophala kotyalo mali kumacandelo oluntu nawabucala.
Qho ngonyaka i-1.500 yezigulo zomhlaza ebantwaneni zifunyanwa eSpain, sisifo kumazwe ahambele phambili sesona sizathu siphambili sokufa kweentsana kwizifo ngaphandle kwenkqubela phambili kubuchule bokuqonda isifo kunye nokuphucula ubomi obufunyenwe ngamayeza amatsha. Isuka e Umbutho waseSpain ngokuchasene noMhlaza khumbula ukuba nangona kungenakwenzeka ukuthintela umhlaza ebantwaneni, "Kuyenzeka ukuba kuphuculwe iindlela zonyango kunye nonyango", into ethi, bakrwelele, inokufezekiswa kuphela ngophando kwaye, ke ngoko, utyalo-mali. Ngale ndlela, kufanele ukuba kuqatshelwe ukuba, ngokweSebe lezeMpilo laseBasque, ngaphezulu kwama-70% omhlaza womntwana uyanyangeka "Ukuchongwa kwangoko kunye neenkqubo ezifanelekileyo zonyango."
Ukunikezelwa kwesiKhokelo «kuQwalaselo lwakwangoko kuMhlaza kuBantwana naBafikisayo»
Phakathi kwezinto ezininzi ezenziwayo eSpain kumsitho woMhla weSizwe woMhlaza waBantwana, kufanelekile ukuqaqambisa umboniso Isikhokelo kuKhathalelo lwakwangoko loMhlaza kuBantwana naBafikisayo, Elungiselelwe yiSpanish Federation yaBazali baBantwana abaNomhlaza (FEPNC), iSpanish Association of Pediatrics (AEP), iSpanish Association of Primary Care Pediatrics (AEPAP) kunye neSpanish Society of Pediatric Hematology and Oncology (SEHOP). Esi sikhokelo, esiqokelela amaqhosha kukhathalelo kunye nokuchongwa kwangoko komhlaza wabantwana kunye nomhlaza wolutsha, sijolise ikakhulu kubaqeqeshi boKhathalelo oluSisiseko kwaye kubandakanya imizobo eneempawu kunye nezalathi zeentlobo eziphambili zomhlaza ezichaphazela abantwana nolutsha.
Abameli bamaziko awohlukeneyo bahlanganisene ekuboniseni isidingo sokuthumela izigulana zabantwana ezinomhlaza okrokrelwayo kwiiyunithi ezizodwa ze I-oncology yabantwana. Njengoko kuchaziwe kwinkomfa yemithombo yeendaba, umhlaza wabantwana sisifo esingaqala ukuzibonakalisa sineempawu ezifanayo nezinye iinkqubo eziqhelekileyo. Ke ngoko, kwimeko apho umntwana okanye umntwana ofikisayo ebonana amatyeli aliqela (umzekelo, kathathu okanye nangaphezulu) kwiimpawu ezifanayo ngaphandle kokuchazwa ngokucacileyo, isiKhokelo sicebisa ukuba bathunyelwe ngokukhethekileyo.
UPilar Ortega, umongameli we-FEPNC, ukuqinisekisile oko “Ukubhaqwa kwangethuba isengumba ojongene nomhlaza wabantwana. Ukwala ukukholelwa ekubeni isifo esifana nesi singachaphazela abancinci kwaye singabinazixhobo ezisivumela ukuba siwubone umhlaza usaqala kwenza umahluko phakathi kobomi nokufa. " Yiyo loo nto, ngokuka-Ortega, "ukuba neeprotokholi zokufumanisa kwangexesha lelona yeza lilungileyo ngokuchasene nomhlaza wabantwana."
Kodwa oku kubhaqa akukho lula, kwaye abona baqwalaseli beempawu zabantwana abaqhelekileyo bahlala bengabazali. Ke ngoko, enye yeengcebiso zokuvumelana kukuba iingcali zoKhathalelo lwePrayimari (i-PC) zithathela ingqalelo ukuqonda kunye nolwazi lwabantwana babo ngabazali babo xa bejonga ukuthunyelwa kwesigulana. Ngale ndlela, uGqirha Begoña Domínguez, umongameli we-AEPap, utshilo "Singoochwephesha abafanelekileyo, ngokusekwe kulwazi oluvela kwiintsapho kunye novavanyo lweklinikhi lwabantwana, ukwenza uxilongo lokuqala olukrokrelwayo lomhlaza wabantwana." Inyani yile yokuba i-90% yabemi abangaphantsi kweminyaka eli-14 ubudala bayaya kuthethwano lwabantwana be-PC. "Ngenxa yobukho besifo okanye isifo, ugqirha wabantwana we-PC kufuneka abenolwazi kunye nezixhobo eziyimfuneko ekuchongeni isifo kunye nokulandela kunye nokulandela, ngokusekwe kulungelelwaniso olusondeleyo nolulwelo kunye ne-oncologist yabantwana", UDkt Domínguez wongeze.
UNjingalwazi Luis Madero, umongameli weSpanish Pediatric Foundation ye-AEP kunye nentloko yeNkonzo ye-Onco-Hematology yeSibhedlele i-Niño Jesús (eMadrid), ugxininise ukuba luncedo kwesi sikhokelo, ngokusekwe kubungqina besayensi, kukhathalelo lokuqala lwezigulana ezinomhlaza. , umba wokubaluleka okukhulu ukusukela “Siza kugqiba ngokuxelwa kwesi sifo. Ezi zifo azifane zenzeke kwaye neempawu azicacanga ncam, nto leyo eyenza ukuba ukuqaphela kube nzima kwaye kungabhidaniswa nezifo ezinganyangekiyo ”.
UMadero uye wagxininisa ukuba esi sikhokelo sisekwe kwezinye ezipapashiweyo kumazwe angabamelwane kwaye ngumzekelo wokukhathalelwa kwabaguli ngokulungelelaniswa okungcono phakathi koGqirha wabantwana kunye noGqirha. Ukongeza kukhathalelo lwakwangoko, omnye umceli mngeni oqaqanjelwe yile ngcali ekukhathaleleni abantwana abanomhlaza ngu-l"ukuthatha inxaxheba kwabantwana kuphando lwezonyango olwenzelwe wena kwisigulana sabantwana". Kulo mgca, ikamva le-Oncology ye-Pediatric lijolise kukhangelo lonyango olwenzelwe wena.
Inkqubela phambili kunyango lomhlaza wabantwana
Ukunqongophala komdla wokurhweba kumhlaza wabantwana kubambe umva uphando lokunyanga amawaka abantwana. Kufuneka ucaphuke! Ewe, esi sihloko singathandekiyo sesinye sezihloko ezinokufundwa kumaphephandaba aliqela ngeCawa.
Kodwa ngethamsanqa, kukho abantu abasebenza nzima ukunika ithemba. Le yimeko yabantu abasebenza kwiCandelo loPhando lweKlinikhi kwiiNzululwazi zeZilingo zeZilwanyana e-Onco-Hematology, emiselwe ngu I-CNIO kunye Isibhedlele sikaYesu osana (ISpain), eqhubeka nethemba lokukhangela unyango olutsha.
Iyunithi isebenza ukukhuthaza imveliso kunye nokwazisa kwicandelo lezonyango kunyango olutsha kumhlaza womntwana. U-Lucas Moreno, umququzeleli wecandelo. Icacise ukuba, xa imigca yonyango iphelile, eli Candelo libonelela abaguli ngezinye iindlela zonyango kuvavanyo lweklinikhi, ngaphandle kwesidingo sokuba bashiye iSpain. Injongo kukuququzelela ukufikelela kuvavanyo lweklinikhi kula matyala apho emva kokusetyenziswa konyango olusezantsi, esi sifo asixoli. Eyona njongo iphambili kukuphucula umndilili wokusinda komhlaza wabantwana, ngoku omi kuma-76%, kunye nokufuna unyango lwezona zinto zinganyangekiyo (ii-neuroblastomas okanye ii-sarcomas kumanqanaba aphezulu kunye nezinye iintlobo zamathumba obuchopho okanye ii-leukemias) ezine kuphela kubantwana abalishumi bayasinda. "Izigulana eziwela ngaphandle komndilili we-avareji zisinda kakhulu kwaye ziyawafuna la machiza matsha," UMoreno ulumkisa. “Kufuneka utyalomali ngakumbi. Kuyinyani ukuba siyaphucula, kodwa ngokusekelwe kumzamo omkhulu » Ngaphandle komdla ophantsi wentengiso owenza ukuba kube "nzima kakhulu ukwenza uphando olukhulu kunye nomgangatho ophezulu," uyanyanzelisa.