Ngokutsho kwe Umbutho WezeMpilo Wehlabathi, ukhathalelo lokuthomalalisa "liphucula ubomi bezigulana kunye neentsapho ezihlangabezana nezifo ezisongela ubomi". Lunyango kunye nongenelelo oludambisa iintlungu kunye nezinye iimpawu, kwaye lubonelela ngenkxaso yengqondo. Kolu ngeno luka-El Confidencial, sifunda ubungqina be-Elisabet, owathi intombi yakhe eneminyaka eli-11 ubudala yaphulukana nobomi bakhe ngo-2014. Wayenesifo esinqabileyo esibizwa ngokuba yi-Rett syndrome, kwaye kwiinyanga emva kokungeniswa esibhedlele okokugqibela, wangena kwinkqubo yokuthomalalisa njengoko kwakungekho sisombululo; Xa ephefumla okokugqibela, ukwenzile nosapho, ekhaya.
Uxwebhu olusuka Icandelo loMphathiswa Wezempilo, Iinkonzo Zoluntu Nokulingana, uxela ukuba ukhathalelo lokunyanga abaguli abalifunayo lilungelo elaziwa yimibutho yamanye amazwe; kunye nemithetho yaseSpain ikwachaza ulungiselelo lwezempilo. Kukho iingcebiso kwinqanaba laseYurophu, eliqokelelwe kwisiCwangciso seSizwe soKhathalelo lokunyanga, esinokuphuhliswa kwalo. Kwithiyori emva koko, "Kuqwalaselwe isigulana esigulela ukufa." Ngaba kunjalo nakubantwana?
USergio del Molino ngumdali wesikhalazo kwiqonga loluntu iTshintsho.org, isihloko sakhe "Abantwana banelungelo lokusweleka emakhaya ngaphandle kokuziva belahliwe. Imvelaphi yeli nyathelo kukusweleka konyana wakhe uPablo owayeneminyaka emi-2 kuphela ubudala, kwaye wayegula yi-leukemia. Indawo elungileyo emhlabeni ukuchitha iintsuku zokugqibela zobomi bakhe likhaya lakhe, endinalo andithandabuzi; Kodwa xa usapho lusishiyayo isibhedlele, kwaye njengoko bekuxeliwe kwisikhalazo, bajongana nengqaqambo yomntwana eyedwa, kuba akukho qela lithuthuzelayo labatyelelayo.
Kwilizwe lethu kukho iindawo ezimbalwa ezizimeleyo ezibonelela ngenkonzo, ngokwenza kuphela iMurcia kunye nezibhedlele ekubhekiswa kuzo eMadrid okanye eCatalonia; kwaye kwimeko kaNiño Jesús (Madrid) yinto eyinyani enkosi kwiimali zabucala. Ke, ukhathalelo lokunyanga ngaphandle kwesibhedlele alusetyenziswa kuninzi lwendawo.
Unonophelo lwabantwana olunyamekelayo lumele umzimba, ingqondo nomoya womntwana, lukwabonelela ngenkxaso kusapho (Icandelo loMphathiswa Wezempilo), kodwa ukuba akukho mfuneko yezopolitiko yokwamkela ilungelo lokubamkela ekhaya, ngenkxaso epheleleyo yezempilo Inkqubo, iintsapho ezizisa abantwana babo ekhaya ngeentsuku zabo zokugqibela okanye iiveki zobomi, Unyango oluyimfuneko kunye nokhathalelo aluqinisekiswanga. Utshintsho lwengqondo luyimfuneko, kuba nangona iyeza lijolise ekusindiseni ubomi, akusoloko kunokwenzeka; Ilungelo lokusweleka ngesidima kwinkampani yabathandekayo, kwaye ngaphandle kwentlungu, ikwalilungelo (ngoonobumba abakhulu) labaguli babantwana abakwimeko embi kakhulu.
Yintoni ukhathalelo lokunyanga kwabantwana?
Babonakaliswa ngokusebenza kwizifo ezahlukeneyo (i-oncological, neurological, iingxaki ngenxa yokungakhuli, njl. Ezi zifo zahlulwe zangamacandelo amane phakathi kweemeko ezisongelayo kodwa ngokusebenza konyango olunyangayo; ayinakubuya umva; kufuna ixesha elide lonyango olunzulu lokugcina ubomi; kunye nenkqubela phambili ngaphandle kokhetho lokunyanga. Inani lamatyala abantwana afuna le nkathalo lisezantsi xa kuthelekiswa nabantu abadala abayifunayo; Kufuneka ithathelwe ingqalelo ukuba abantwana bayakhula, echaphazela iinkalo ezithile zononophelo.
Eminye yemiba emisela le nkonzo yezempilo kukuzibandakanya ngokweemvakalelo, ukuba yindawo entsha yolwazi, okanye ukufumaneka okuphantsi kwamachiza. Kwelinye icala, ungquzulwano kwimikhwa esesikweni lunokuvela, kuba ekubeni abazali benoxanduva, umnqweno womntwana kunye / okanye ukuthatha kwabo inxaxheba akunakuthathelwa ngqalelo. Isicatshulwa se-Ofisi yoMphathiswa Wezempilo sibonisa Kufuneka uqaphele indawo 'yokuncancisa' apho ukhathalelo olufunekayo luya kuba kukhathalelo oludlamkileyo.
Yinyani eyoyikekayo nebuhlungu.
Akukho mzali ukulungeleyo ukusweleka komntwana wakhe, kuba oomama nootata BANIKA ubomi: into yendalo kukuba abantwana bethu bayasinda. Kwezi meko zezifo ezisongela ubomi kwaye zingaxoleli, iMpilo yethu iyahlangabezana nenyani yokuba kukho iimeko ezinjengezikaPablo, Utata wakhe (uSergio) unebhlog yenguqu yoTshintsho njengasemva kokuba bephelile i-chemotherapy kunye nolunye unyango, ukongeza kufakelo lomongo wethambo, baye baya kungena kwakhona kwi-leukemia. Isigqibo sokubuyisela umntwana ekhayeni lakhe sibonakala sisengqiqweni, kwaye amayeza akwabonisa nokhathalelo, kwakutheni ukuze usapho luzive lushiywe kangaka ngamaxesha anzima kangaka?
Ulawulo lweentlungu: umbuzo obalulekileyo.
Kwiwebhusayithi ye-SECPAL, kukho ulwazi olunomdla kwesi sihloko: Izifo ezingapheliyo zihlala zikhona iintlungu, ezongeza ukonwaba kwazo, zibangela ukungazinzi, ukuphazamiseka kokulala okanye ukungabinamdla wokutya. Ngamanye amaxesha le ntlungu ayixatyiswanga kakuhle ngenxa yolondolozo lwezinto ezinxaxhileyo ezinje ngokuba ngumntwana omncinci wokuzibonakalisa okanye ukungabi namava.
Umbhalo wesikhalazo kuTshintsho uphela ngolu hlobo:
“Kungenxa yoko le nto ndicela utyikityo lwakho ndicela iSebe lezeMpilo kunye noLuntu oluZimeleyo ukuba basebenze kunye ukufaka kunye nokwandisa iinkonzo zokunyanga abantwana. njengelungelo kuye nawuphi na umntwana ocelwa ngabazali, nokuba bahlala phi na. Ndiyazi ukuba singayiphumeza, kuba enkosi kwizicelo esele ziqalisiwe kweli qonga, inkqubela phambili iyenziwa kwezinye iindawo ezininzi zezeMpilo. Sidinga nje yonke inkxaso enokwenzeka ”.