La ispina bifida Yiyo Isiphene se-neural tubeOko kukuthi, ukwakheka kombungu okuba yingqondo yosana kunye nomqolo, kunye nezicubu zangaphakathi. Ityhubhu ye-neural iyavala ngomhla wama-28 emva kokumitha kodwa ukuba oku akwenzeki ngokuchanekileyo, oko kukuthi, ityhubhu ye-neural ayenzi okanye ingavali kakuhle, oku kuyabonakala Isiphene sokuzalwa eguqulela kwi- abantwana abane-spina bifida.
Injani i Ubomi babantwana abane-spina bifida? Inxalenye yempendulo iya kuxhomekeka kwinqanaba ukusukela ukuba iimeko ziqala kancinane ukuya kwezinzima, oku kuxhomekeke kudidi lwesiphene, indawo, iingxaki kunye nobukhulu.
Ukuphila ngokusikelwa umda
Umsebenzi owoyikisayo onabantwana abane-spina bifida kukufunda ukuzimela, into ekufuneka ikhuthazwe ngabazali besebancinci. Oku kunokwenzeka ngokwazisa iindlela ezincinci kubomi bemihla ngemihla ezinokwenza okuninzi okuhle kubantwana abane-spina bifida ukwazi ubunjani bemizimba yabo kwaye ke baphuhlise izakhono zokuzimela ngakumbi imihla ngemihla. Imisebenzi yobomi bemihla ngemihla inokubenza ukuba basebenze ngakumbi, ukusuka ekubekeni iithoyi ekukhetheni iimpahla zokunxiba, yonke into idlala indima ekufumaneni inkululeko.
La Ubomi babantwana abane-spina bifida Ifuna uncedo olongezelelekileyo kodwa, kwelinye icala, sihlala sithetha ngabantwana abanokwenza imisebenzi ngaphandle koncedo okanye bafumane ukuzimela njengabo. Ngesi sizathu, kubalulekile ukuba abazali babakhuthaze ukuba benze izinto ngokwabo ukuze babancede xa kufanelekile ngaphandle kokugqiba yonke imisebenzi.
Imalunga nokufezekisa ibhalansi ukuze bakwazi phuhlisa ukuzimela okwenza ukuba bazimele kwilixa elizayo.
Ubunzima bomzimba
Las ubunzima bomzimba bayinxalenye yobomi babantwana abane-spina bifida Kungenxa yoko le nto, ngokubanzi, aba bantwana befuna izixhobo ezithile ukuze bajikeleze. Nangona kukho abantwana abane-spina bifida abahamba ngaphandle kobunzima, kuqhelekile ukuba basebenzise iintonga, ukuhambahamba, izitulo ezinamavili, okanye izihlangu zezilima ezidityaniswe ngentsinjana / ngeplangana, Kuxhomekeke kwinqanaba.
El Ndisebenza nomzimba womzimba Kuyinxalenye yonyango lwabantwana ukuze bakwazi ukwandisa amandla, ukuguquguquka kunye nokuhamba okunokwenzeka. Umsebenzi womzimba ubalulekile kuphuhliso olufanelekileyo lwaba bantwana kwaye yiyo loo nto kubalulekile ukuba babe nokunxibelelana okuhle ukuze bakwazi ukudlala imidlalo yomzimba kunye nabahlobo, bathathe uhambo okanye bajikeleze ubumelwane kwaye yenza imisebenzi yolonwabo kwiipaki nakwiindawo ezingaphandle.
Ezinye iingxaki nge-spina bifida
Zimbini iingxaki ezisisiseko Echaphazela nefayile ye- abantwana abane-spina bifida: ukungakwazi ukuzibamba kunye nokuphazamiseka kolusu. Aba bancinci bahlala bengakwazi ukulawula ixesha lokuya kwindlu yangasese kwaye kungoko kubalulekile ukuba kuphuhliswe inkqubo ukuze oku kungabutshintshi ubomi babo. Ngamanye amaxesha, bakhetha inkqubo yokuya kwigumbi lokuhlambela elibandakanya i-catheter yokukhupha umchamo, ngelixa kwabanye bezama ukulungisa ukukhutshwa ngokutya okunothe kwifibre. Kukwakho nenye indlela yoqhaqho.
Los iingxaki zolusu kubantwana abane-spina bifida Zikwenzeka rhoqo, njengokutsha, izilonda, umbona kunye namadyungudyungu. Phakathi kokukhathalela, kuya kufuneka unike ingqalelo ukukhusela ukungqubana, ubeke i-sunscreen kwaye ubathintele ukuba bangadibani namanzi ashushu kakhulu.
Iinkqubo zoncedo
Kubalulekile ukuba wazi ukuba uluntu lubonelela ngokwahlukileyo iinkqubo zasimahla zabantwana abane-spina bifida ezinceda ukuba baphucule ubomi babo ngcono njengenkqubo yokungenelela kwangethuba kwiintsana kunye naBantwana aBancinci abakhubazekileyo kunye neNkqubo yeeNkonzo zezeMfundo eKhethekileyo yaBantwana abakhubazekileyo kwiPreschool Age.
Kwelinye icala, kukho ifayile ye- Umbutho weSpina Bifida lo nto Iintsapho ezinabantwana abane-spina bifida ungaqhagamshelwa. Okokugqibela, kubalulekile ukuba uhlolwe rhoqo noogqirha kunye neengcali, kubandakanya ugqirha wezamayeza, ugqirha omtsha, kunye nogqirha wamathambo.