Kuleli sonto sigubha i- Usuku Lukazwelonke lwe-Multiple Sclerosis, isifo se-neurodegenerative and autoimmune lokho kuvame ukuvela kakhulu kubantu, ikakhulukazi abesifazane, abadala kuneminyaka engama-20. Kodwa-ke kukhona nabafana namantombazane abaphethwe yilesi sifo.
Konke kuguquka ezimpilweni zemindeni lapho elinye lamalungu alo kutholakala ukuthi linalesi sifo. I-Multiple sclerosis ezinganeni ibizwa i-multiple sclerosis yobuntwana, futhi yize lingekho ikhambi, imishanguzo yamanje ivumela ukulawulwa okuhle kwayo.
Kuyini ukuthi i-sclerosis eminingi?
Njengoba kushiwo ngaphambili, i-multiple sclerosis (MS) isifo esizimele kanye nesifo se-neurodegenerative. Uhlelo lwesiguli luhlasela izicubu ezinempilo ohlelweni lwezinzwa oluphakathi. Thola amaseli anempilo futhi ayingozi, lokhu okwenzayo ukubhubhisa ungqimba osiza ukudlulisa imizwa yezinzwa, i-myelin.
Njengoba i-MS ingenye isifo esinezimpawu ezahlukahlukene ukuxilongwa ezinganeni kunzima kakhulu, ngenxa yesimo esingajwayelekile secala. Endabeni yabafana namantombazane akukho ukuqubuka kaningi, futhi izimpawu azihlali njengabantu abadala, kepha lokhu akusho ukwelashwa.
Kunemibono eyahlukene mayelana izimbangela ye-multiple sclerosis ezinganeni noma kubantu abadala. Abanye bakhuluma izici zofuzo, igciwane (U-Epstein Barr, isibonelo)… kepha okucacile futhi okufakazelwe wukuthi akusona isifo esithathelwanayo. Ingane ene-multiple sclerosis ingahlobana ngokujwayelekile nawo wonke umuntu omzungezile.
Izimpawu zobuntwana be-multiple sclerosis
Ukukhuluma iqiniso kufanele kushiwo lokho ayikho indlela yokubikezela ukuthi izimpawu zokuqala zizovela nini ye-multiple sclerosis, futhi ngeke ibe yini. Lokhu kuzoncika kakhulu ekutheni iyiphi ingxenye yomgogodla noma ubuchopho obonakele.
Phakathi kwezimpawu ezivame kakhulu yilezi:
- Ukuphazamiseka okubonakalayo, kungaba nombono ophindwe kabili noma ofiphele
- Izinkinga zokuquleka, nokungalingani okuholela ekuweni
- Ukuba ndikindiki nokushosholozela kwezandla nasemilenzeni
- Ubuthakathaka bemisipha, isikhathi esiningi, emilenzeni
- Ukudlidlizela, ukuqubuka
- Ukukhathala okuqhubekayo okuthinta ukusebenza kwemisebenzi yokuzijabulisa neyesikole
- Ubunzima ngokuthuthuka kwezinqubo zokuqonda ezinjengokunaka noma ulimi
Lapho udokotela we-neuropaediatric etholile lesi sifo kunengqondo ukuthi umndeni udlula esikhathini sokuzivumelanisa nezimo. Njengakwezinye izimo, sincoma ukuthi ufune usizo lochwepheshe. Bona futhi bazoba yisiphakamiso sakho sokukhuthazela.
Kubalulekile ukuthi umndeni kanye nomuntu othintekile chaza izimpawu ezitholwa ngokusobala ngangokunokwenzeka. Njengoba esinye sezikhalazo ezivame kakhulu kubazali bezingane ezithintwe yi-MS kunzima ukuthola ukuxilongwa. Lokhu kungenxa yokuthi alukho uvivinyo lwezinhloso olungatshela ngqo ukuthi ngabe umuntu une-MS noma cha. Okwabo izimpawu nazo zivamile kwezinye izifo lokho kulimaza i-myelin. Ngaphezu kwalokho, abanye abantu babhekana nezimpawu kanye kuphela empilweni yabo, futhi ababi nokuqubuka futhi, lokhu akusona isimo se-multiple sclerosis.
Izindaba ezimnandi ukuthi izingane eziningi zibamba iqhaza kwezokungcebeleka nakwezenhlalo ezifanele iqembu labo leminyaka. Bafundile ukwenza izindlela zokulawula ukucindezeleka nokunqoba lezi zimo.
Ukwelapha
Ngokwelashwa inhloso ukugwema ukuqubuka okusha nezilonda ezintsha ohlelweni lwemizwa. Yize lungekho ikhambi, ukuvela kancane kwalesi sifo kuhloselwe. Ziyizidakamizwa impilo yonke. Asikho isidakamizwa esisodwa, kodwa eziningana, futhi izinga labo lokusebenza lihlukahluka kuye ngengane. Abazali nodokotela bezingane balwela ukuqapha ngokucophelela ukunakekelwa okukhethekile kwemiphumela emibi engaba khona yemithi.
Ngaphandle kwezidakamizwa, kubalulekile ukubheka i- ukudla nemidlalo. Akukho ukuncoma okuqondile ekudleni, kepha kunothile, kuhlukahlukene futhi kuyalinganiselwa. Futhi ngenxa yezemidlalo, eqondiswe futhi efanelekile, bazothola ukumelana okukhulu.
Noma yiluphi ucwaningo olwenziwa ezinganeni ezine-MS lusizo olukhulu, zombili kufayela le- Ububanzi obujwayelekile nakwezenhlalo njengokuvela emisebenzini yezokwelapha uqobo.