Ukuba nengane ene-spina bifida kuyinselele yangempela kubo bonke abancane nakubazali ngokwabo. Ingane engenazinkinga zempilo ingamandla amsulwa futhi akhombisa ngaso sonke isikhathi intshisekelo enkulu yokwazi konke okubazungezile.
Endabeni yespina bifida kuphambene futhi ngabazali okufanele basize izingane zabo ukukwazi ukuthuthukisa nokuhlola konke okubazungezile.
Siza ukuzimela
Isihloko sokuqala somzali onengane enenkinga enjalo ukukhuthaza ngaphakathi kwamathuba abo ukuthi basebenze kakhulu futhi bazimele. Ngalokhu ungabheka le mihlahlandlela elandelayo:
- Kufanele uhlale nengane futhi umfundise ngangokunokwenzeka ngesihloko se-spina bifida.
- Kufanele umcele akusize emisebenzini ehlukene yansuku zonke njengoba kungaba njalo ngokucosha amathoyizi abo.
- Mfundise ngaso sonke isikhathi uku thatha izinqumo
Yize ezikhathini eziningi ingane izodinga usizo lukayise, kufanele ume futhi uthembe ukuthi iyakwazi ukwenza umsebenzi ngaphandle kosizo. Ngalokhu, omncane angazizwa ukuthi ukwazi ngokuphelele ukwenza omunye umsebenzi eyedwa futhi aqinise ukuzethemba kwakhe nokuzethemba kwakhe.
Izinkinga zokuhamba
Ingane ngayinye enalesi sifo yehlukile komunye nomunye futhi izimpawu zayo ziyahlukahluka impela. Uma kukhulunywa ngokuhamba, kunezingane ezine-spina bifida ezikwazi ukuhamba ngaphandle kosizo ngenkathi kukhona abanye abadinga izihlalo ezinamasondo noma izinduku.
Uma bane-spina bifida eduze kwekhanda bazodinga isihlalo esinamasondo ukuze bakwazi ukuzulazula ngenkathi benaso endaweni engezansi yomgogodla, Banokunyakaza okukhulu emilenzeni futhi bangakwazi ukuhamba bodwa. Umsebenzi we-physio ungukhiye ekusizeni ingane ukuthi ibe namandla nokuhamba okwengeziwe emilenzeni.
Ukuqeqeshwa kwezindlu zangasese
Enye yezinkinga izingane ezine-spina bifida ezinazo ukuthi kunzima kuzo ukulawula ama-sphincters azo. Ezimweni eziningi, kufakwa ishubhu noma ipayipi esinyeni esinyeni ukuze kube lula ukuchama kube lula futhi kube lula. I- ukudla Kubalulekile futhi ngoba imvamisa icebile ku-fiber ukuze bangabi nezinkinga zamathumbu.
Izinkinga zesikhumba
Izingane ezine-spina bifida zivame ukuba nezinkinga zesikhumba ezinzima njengoba kwenzeka ngezilonda, ummbila noma amabhamuza. Imvamisa zivela endaweni yezinyawo noma yamaqakala futhi izikhathi eziningi ingane ayivami ukukuqonda ngoba ayinakuzwela endaweni engezansi yomzimba wayo. Kungumsebenzi wabazali ukuhlola njalo isikhumba sengane yabo ukuthi abanamabhalasha noma izilonda emzimbeni wabo yini.
Hlola impilo yakho
Uma ingane yakho inenkinga enjalo kubaluleke kakhulu ukuqapha impilo yayo ngokusebenzisa udokotela wezingane noma udokotela womndeni. Kubalulekile ukwenza uchungechunge lwezilawuli ezisivumela ukuthi sazi ukuthi ingane isesimweni esifanele. Ngaphezu kwalokho, ingane kufanele ihlolwe ngongoti abehlukahlukene njengo-orthopedist, urologist, noma i-neurosurgeon.
Ukuphepha
Ukuphepha kubalulekile kuzo zonke izingane ezine-spina bifida. Lezi yizingane ezisengozini enkulu yokulimala nokuhlukunyezwa. Kungakho abazali kufanele bahlale eduze kwengane yabo futhi kukwazise ukuthi wenzeni uma kungenzeka bazizwe besongelwa ngomunye umuntu.
Ukuba nengane ene-spina bifida kuyinselele yangempela kubazali, ngoba ingane encane edinga ukunakekelwa okuphindwe kabili kunenye ingane enempilo. Kodwa-ke, ngokubekezela nokuqina, ungakhulisa futhi ufundise ingane ehlushwa yinkinga enjalo yezempilo.