NgeSonto eledlule, ngoFebhuwari 15, bekugujwa futhil Usuku Lomhlaba Lomdlavuza Wezingane. Ngenxa yalokhu, kubanjwe imicimbi eminingi ngenhloso yokuqwashisa nokwenza umphakathi wazi ngokubaluleka kwale nkinga kanye nesidingo sokufinyelela ngokushesha ekuhlolweni nasekwelashweni okufanele. Ochwepheshe abaningi bathathe leli thuba ukusola inzalo encane yezentengiselwano ekhona ezidakamizweni ezenzelwe ukulwa nomdlavuza wezingane ngenxa yesibalo sazo esiphansi kubantu, okwenza ucwaningo lwabo lube nzima kakhulu ngenxa yokushoda kotshalomali kuzo zombili izinhlaka zikahulumeni nezizimele.
Njalo ngonyaka kutholakala izigameko zomdlavuza ezinganeni eziyi-1.500 XNUMX eSpain, isifo emazweni asethuthukile esiyimbangela ehamba phambili yokufa kwezinsana ezifweni naphezu kwentuthuko yamasu okuxilonga nokuphila okuthuthukile okutholakala ngemithi emisha. Ukusuka I-Spanish Association Against Cancer khumbula ukuthi yize kusengenakwenzeka ukuvimbela umdlavuza ezinganeni, "Kungenzeka ukuthuthukisa izindlela zokuxilonga nokwelashwa", okuthile, abakudwebelayo, kungafinyelelwa kuphela ngocwaningo futhi, ngakho-ke, ukutshalwa kwezimali. Ngalo mqondo, kufanele kwaziwe ukuthi, ngokusho koMnyango Wezempilo waseBasque, ngaphezu kuka-70% womdlavuza wezingane uyelapheka "Ukuxilongwa kusenesikhathi kanye nezinqubo ezifanele zokwelashwa."
Isethulo se- «Umhlahlandlela Wokunakwa Kusenesikhathi Umdlavuza Ezinganeni Nasebusheni»
Phakathi kwemisebenzi eminingi eyenziwa eSpain ngesikhathi seSuku Lomhlaba Wonke Lomdlavuza Wezingane, kufanelekile ukugqamisa ukwethulwa kwe Umhlahlandlela Wokunakekelwa Kokuqala Komdlavuza Ezinganeni Nasebusheni, elungiselelwe yiSpanish Federation of Parents of Children with Cancer (FEPNC), iSpanish Association of Pediatrics (AEP), iSpanish Association of Primary Care Pediatrics (AEPAP) kanye neSpanish Society of Pediatric Hematology and Oncology (SEHOP). Lo mhlahlandlela, oqoqa okhiye bokunakekelwa nokuxilongwa kusenesikhathi komdlavuza wezingane nowentsha, ubhekiswe ikakhulukazi kochwepheshe bezokunakekelwa okuyisisekelo futhi uhlanganisa nemidwebo enezimpawu nezinkomba zezinhlobo eziyinhloko zomdlavuza ezithinta izingane nentsha.
Abamele izikhungo ezehlukene baqondane ngesikhathi bekhombisa isidingo sokudlulisela iziguli ezingane ezinomdlavuza okusolakala ukuthi ziyizinhlaka ezikhethekile ze I-oncology yezingane. Njengoba kuchaziwe engqungqutheleni yabezindaba, umdlavuza wezingane yisifo esingaqala ukuzibonakalisa sinezimpawu ezifanayo nezinye izinqubo ezivamile. Ngalesi sizathu, uma kwenzeka ingane noma eyeve eshumini nambili ibonisana kaningi (ngokwesibonelo, kathathu noma ngaphezulu) ngezimpawu ezifanayo ngaphandle kokuthola ukuxilongwa okucacile, uMhlahlandlela uncoma ukuthi bathunyelwe ngokukhethekile.
UPilar Ortega, umongameli we-FEPNC, ukuqinisekisile lokho “Ukutholakala kusenesikhathi kusalindwe ngodaba lomdlavuza wezingane. Ukwenqaba ukukholelwa ukuthi isifo esinjengalesi singathinta abancane futhi singabi namathuluzi avumela ukuthi sikwazi ukuthola umdlavuza usaqala kukhomba umehluko phakathi kokuphila nokufa ”. Yingakho, ngokusho kuka-Ortega, "ukuba namaphrothokholi wokuthola kusenesikhathi kuwumuthi ongcono kakhulu wokulwa nomdlavuza wezingane."
Kepha lokhu kutholwa akulula, futhi ababukeli abaphambili bezimpawu zezingane ngokuvamile ngabazali. Ngalesi sizathu, enye yezincomo zokuvumelana ukuthi ochwepheshe Bokunakekelwa Okuyinhloko (i-PC) babheka ukuqonda nolwazi lwezingane zabo ngabazali babo lapho becubungula ukuthunyelwa okukhethekile kwesiguli. Ngalo mqondo, uDkt Begoña Domínguez, umongameli we-AEPap, ukusho lokho "Singabachwepheshe abafanele kakhulu, ngokususelwa olwazini oluqhamuka emindenini kanye nokuhlolwa kwezingane emtholampilo, ukwenza ukuxilongwa kokuqala okusolwayo ngomdlavuza wezingane." Iqiniso ngukuthi ama-90% wabantu abangaphansi kweminyaka eyi-14 yobudala baya emihlanganweni yokubonana nezingane ye-PC. "Njengoba kunesifo esikhona noma isifo, udokotela wezingane we-PC kumele abe nemininingwane namathuluzi adingekayo ukuze axilongwe futhi alandelwe futhi alandelwe, ngokususelwa ekubambisaneni okusondele nokunamanzi ne-oncologist yezingane", UDkt Domínguez ungeze.
UProfesa Luis Madero, umongameli weSpain Pediatric Foundation ye-AEP nenhloko ye-Onco-Hematology Service yeSibhedlela iNiño Jesús (Madrid), ubalule ukubaluleka kwalo mhlahlandlela, ngokuya ngobufakazi besayensi, bokunakekelwa kokuqala kweziguli ezinomdlavuza , yindaba yokubaluleka okukhulu kusukela “Izocacisa ngokuvela kwesifo. Lezi zifo azivamile ukwenzeka futhi izimpawu azicacisanga, okwenza ukuqashelwa kube nzima futhi kungadidaniswa nezifo ze-banal ngokuphelele.
UMadero uphinde wakugcizelela ukuthi lo mhlahlandlela ususelwa kweminye eshicilelwe emazweni angomakhelwane futhi uyisibonelo sokunakekelwa kweziguli ngokubambisana okungcono phakathi kukadokotela wezingane oyi-Primary Care kanye no-Specialised. Ngaphezu kokunakekelwa ngaphambi kwesikhathi, enye inselelo le ngcweti eveze yona ekunakekeleni izingane ezinomdlavuza ngu-l"ukubamba iqhaza kwezingane ekuphenyweni kokwelapha okwenzelwe wena isiguli sezingane". Kulayini, ikusasa le-Pediatric Oncology liqondiswe ekufuneni ukwelashwa okwenzelwe wena.
Intuthuko ekwelapheni umdlavuza wezingane
Ukungabi nentshisekelo kwezentengiselwano kumdlavuza wezingane kubuyisela emuva ucwaningo lokwelapha izinkulungwane zezingane. Kufanele ucasuke! Yebo, lesi sihloko esingavuseleli besinye sezihloko ezingafundwa emaphephandabeni amaningi ngeSonto.
Kepha ngenhlanhla, kukhona abantu abasebenza kanzima ukunikeza ithemba. Lokhu kunjalo ngabantu abasebenza eMtholampilo Wokucwaninga Kwemitholampilo Yezilingo Zezingane e-Onco-Hematology, esungulwe yi I-CNIO futhi i Isibhedlela sikaJesu sezinsana (ISpain), eqhubeka ngokulangazela ekufuneni izindlela ezintsha zokwelapha.
Lolu phiko lusebenza ukukhuthaza ukukhiqizwa nokwethulwa emkhakheni wokwelashwa kwemithi emisha elwa nomdlavuza wezingane. ULucas Moreno, umxhumanisi woPhiko. ichaze ukuthi, uma imigqa yokwelashwa enezinqubo ezilandelwayo isiphelile, lolu Phiko lunikeza iziguli ezinye izindlela zokwelapha ngaphakathi kovivinyo lomtholampilo, ngaphandle kwesidingo sokuthi bashiye iSpain. Inhloso ukwenza lula ukufinyelela ekuhlolweni kwemitholampilo kulezo zimo lapho ngemuva kokufaka ukwelashwa okujwayelekile, lesi sifo asixoli. Inhloso enkulu ukuthuthukisa isilinganiso sokusinda komdlavuza wezingane, okwamanje esimi kuma-76%, nokufuna ukwelashwa kwama-resistant (neuroblastomas noma ama-sarcomas ezigabeni ezithuthukile kanye nezinye izinhlobo zamathumba obuchopho noma ama-leukemias) lapho kuphela ezine ezinganeni eziyishumi ziyasinda. "Iziguli eziwela ngaphandle kwezinga elijwayelekile zisinda kabi futhi zidinga le mithi emisha," UMoreno uxwayisa. “Kudingeka imali eningi. Kuyiqiniso ukuthi siyathuthuka, kepha ngokuya ngomzamo omkhulu » Ngaphandle kwentshisekelo encane yezentengiselwano ekwenza kube "nzima kakhulu ukwenza ucwaningo olukhulu nolusezingeni," uyaphikelela.