Namuhla Agasti 17 kugujwa Usuku Lomhlaba lwe- Isifo samajazi, kungenzeka ukuthi awukaze uzwe ngalesi sifo esingajwayelekile, eSpain esithinta amakhulu emindeni, nesikabani izimpawu zokuqala zenzeka ebuntwaneni.
Isifo samajazi sikhiqiza i- ukulahleka kombono okuqhubekayo ngokuvamile kuthinta kuphela iso elilodwa. Kuyinqubo engapheli eqala ebuntwaneni nasebusheni, futhi ikhula kancane futhi ngokuqhubekayo, ize ikhiqize ukulahleka okuphelele kombono. Kodwa-ke, kukhona izindlela zokwelashwa ezingasebenza futhi, kwesinye isikhathi, lesi sifo siyazimela.
Siyini isifo samajazi futhi sithinta ikakhulu?
Isifo samajazi, njengoba sesishilo ukuthi akuvamile, ngakho-ke se cabanga ngokungavamile. kuyisifo okungamahlalakhona (ukuba nenkambo ende yesikhathi eside), okuqhubekayo nokuvame ukuhlangana lokho kuthinta i-retina.
Kuthinta amadoda amaningi kunabesifazane, kepha amaqembu engcuphe awakabonwa futhi akukho ukuhlelelwa okwaziwayo kobuhlanga noma okwehlukile. Iziguli ezingama-80% sezivele zikhona izimpawu ngaphambi kweminyaka yobudala eyi-10. Izimpawu zokuqala zokwelashwa zenzeka phakathi kweminyaka engu-6 nengu-8. Abaphenyi bakhiphe isinqumo sokuthi yisifo esizalwa ngofuzo, noma kunjalo ukuthi sivela kuphi akwaziwa.
Izimpawu ngokuvamile ziqukethe ukulahleka kombono obumbene ngoba lesi sifo sivame ukuthinta iso elilodwa kuphela. Ikhiqiza i-strabismus futhi ngezigaba ezithuthukile, i-retinal detachment. Kodwa-ke, okokuqala kungabonakalisa izimpawu njengoba izingane ezinokulahleka kokubona okungajwayelekile zivame ukukhononda, kepha zivumelane nalolu hlobo lombono. Iqiniso lokuthi kune-exudates ephuzi ebonakalayo ngokuhlola iso nge-ophthalmoscope kungenye yezifo ezihlukanisa ne-leukocoria. Lapho lezi exudates zithinta ingxenye emaphakathi nebucayi ye-retina, ukulahleka kwamandla okubuka kubaluleke kakhulu. I-edema ye-Macular ingenzeka.
Ukwelashwa okunconyiwe
Kukhona ukwelashwa kwesifo samaJazi, okuncike ezingeni lokuvela kwalesi sifo nendawo kanye nobukhulu bezilonda ku-retina. Okuvame ukwenziwa ukuthi isicelo se-laser ku-retina noma ku-cryotherapy, ekubhujisweni kwezilonda ngamakhaza.
Ukwelashwa kubhekiswe ngqo ku- ukuvalwa kwemikhumbi ye-retinal engajwayelekile ngokulahlekelwa ukwenza lula ukuxazululwa kwe-exudation kanye ne-retinal detachment. Ezimweni eziningi, ngaphezu kuka-70%, zizinzile ngalokhu kwelashwa, noma ngabe kuyisikhuthazo kanye nombono wokuyekethisa we-macular.
Ezimweni ezisezingeni eliphakeme kakhulu kudinga amasu okuhlinza njengokubeka kabusha i-retina. Isifo samajazi kwesinye isikhathi kunzima ukusihlukanisa ne-retinoblastoma, uhlobo lomdlavuza olungandile oluthinta izicubu. Futhi okuxakayo ukuthi, yize kuyisifo esingelapheki, ezimweni ezithile ukuqhubeka kwesifo kuyazimela ngokwaso futhi ngaphandle kokwelashwa.
I-Afece, Inhlangano Yamalungu Omndeni neziguli ezinamajazi eSpain
ESpain, kusukela ngo-2016 kukhona I-AFECE, Inhlangano Yamalungu Omndeni neziguli ezinamajazi eSpain ezinze eYuncos, umasipala waseToledo. Le nhlangano, eyavela njengabaningi eSpain, ngenxa yesipiliyoni sabazali abathile abathintekile, ibhaliswe kwiFederal of Rare Diseases, iFEDER.
Kuwo wonke umlando wayo omfushane, i-AFECE yenze imikhankaso ehlukene yokuqwashisa ngamanethiwekhi ayo omphakathi ukuze ukuqwashisa emphakathini mayelana nalesi sifo esingavamile futhi ukhuthaze ucwaningo lwesayensi. Ngaphezu kwalokho, omunye wemisebenzi yawo, ochazwe kabanzi kuwebhusayithi, ukuzama ukuhlanganisa amacala atholakala enesifo samaCoats, anikeze izwi kubo bonke abathintekayo, okwenza kwaziwe ngangokunokwenzeka ngeqiniso leziguli nemindeni yazo.
Le nhlangano ibilokhu ikhona ukhishwa ngemiklomelo ehlukahlukene. Ungamlandela ezinkundleni zokuxhumana, noma uthole izindaba zakhe bese unikela nge-webhusayithi.