La spina bifida Kuyinto a i-neural tube defect, okungukuthi, ukwakheka kombungu kamuva okuba yingqondo yengane nomgogodla, kanye nezicubu zangaphakathi. Ishubhu le-neural liyavalwa ngosuku lwama-28 ngemuva kokukhulelwa kodwa uma lokhu kungenzeki kahle, okungukuthi, ithubhu le-neural alakheki noma lingavaleki kahle, lokhu kuyavela ukukhubazeka kokuzala okuhumushela ku izingane ezine-spina bifida.
Injani i- impilo yezingane ezine-spina bifida? Ingxenye yempendulo nayo izoncika ezingeni ngoba amacala avela kobumnene kuya kokubi, lokhu kuya ngohlobo lwesici, indawo, izinkinga nosayizi.
Ukuphila ngokulinganiselwa
Umsebenzi owesabekayo izingane ezine-spina bifida onawo ukufunda ukuzimela, into abazali okufanele bayikhuthaze kusukela besebancane kakhulu. Lokhu kungenzeka ngokwethula imizila emincane empilweni yansuku zonke engenza okuhle okuningi ezinganeni ezine-spina bifida ukwazi ubunjalo bemizimba yazo futhi ngaleyo ndlela kuthuthukiswe amakhono okuzimela usuku nosuku. Imisebenzi yokuphila kwansuku zonke ingabenza basebenze ngokwengeziwe, kusukela ekubekeni amathoyizi ekukhetheni izingubo zokugqoka, konke kudlala indima ekutholeni ukuzimela.
La impilo yezingane ezine-spina bifida Kudinga usizo olwengeziwe kepha, ngakolunye uhlangothi, sihlala sikhuluma ngezingane ezingenza imisebenzi ngaphandle kosizo noma zithole ukuzimela njengoba zizenza. Ngalesi sizathu, kubalulekile ukuthi abazali babakhuthaze ukuthi benze izinto bebodwa ukuze babasize lapho kunesidingo ngaphandle kokuqedela yonke imisebenzi.
Imayelana nokuthola ibhalansi ukuze bakwazi ukuthuthukisa ukuzimela okubavumela ukuthi bakwazi ukuzimela esikhathini esizayo
Ubunzima bomzimba
I-Las ubunzima bomzimba buyingxenye yempilo yezingane ezine-spina bifida yingakho, ngokuvamile, lezi zingane zidinga amadivayisi athile ukuzungeza. Yize kunezingane ezine-spina bifida ezihamba ngaphandle kobunzima, kujwayelekile ukuthi zizisebenzise izinduku, izinduku, izihlalo ezinamasondo, noma izinsimbi, kuya ngezinga.
El Ngisebenza nodokotela womzimba Kuyingxenye yokwelashwa kwezingane ukuze zikwazi ukwandisa amandla, ukuguquguquka kanye nokunyakaza kwamathuba. Ukuzivocavoca umzimba kubalulekile ekukhuleni okufanele kwalezi zingane futhi yingakho kubalulekile ukuthi babe nokuxhumana okuhle ukuze bakwazi ukudlala imidlalo yomzimba nabangane, ukuhambahamba noma ukuzungeza indawo yangakini futhi yenza imisebenzi yokuzijabulisa emapaki nasezikhaleni ezingaphandle.
Ezinye izinkinga nge-spina bifida
Kukhona ezimbili izinkinga eziyisisekelo lokho kuthinta ne izingane ezine-spina bifida: ukungazibambi kanye nokuphazamiseka kwesikhumba. Laba abancane kaningi abakwazi ukulawula ukuthi bazoya nini endlini yokugezela yingakho kubalulekile ukwenza uhlelo ukuze lokhu kungashintshi izimpilo zabo. Kwezinye izimo, bakhetha uhlelo lokuya endlini yangasese efaka ipayipi lokukhipha umchamo, kuyilapho kwezinye bezama ukwenza njalo ukukhishwa kwabantu ngokudla okune-fiber. Kukhona enye futhi indlela yokuhlinzwa.
I-Los izinkinga zesikhumba ezinganeni ezine-spina bifida Zibuye zivame, njengokusha, izilonda, ummbila namabhamuza. Phakathi kokunakekelwayo, kufanele unake ukugwema ukungqubuzana, ubeke isikrini selanga futhi ubavimbele ekuthintaneni namanzi ashisayo kakhulu.
Izinhlelo zosizo
Kubalulekile ukwazi ukuthi imiphakathi inikela ngokuhlukile izinhlelo zamahhala zezingane ezine-spina bifida ezibasiza ukuthi bathuthukise kangcono izimpilo zabo ezifana noHlelo Lokungenelela Kwangaphambi Kwezingane Nezingane Ezincane Ezikhubazekile kanye noHlelo Lwezinsizakalo Zemfundo Ekhethekile Yezingane Ezikhubazekile Eminyakeni Yasenkulisa.
Ngakolunye uhlangothi, kukhona ifayela le- Inhlangano yeSpina Bifida ngakho imindeni enezingane ezine-spina bifida ungaxhumana nabo. Ekugcineni, kubalulekile ukuthi uhlale uhlolwa nodokotela kanye nochwepheshe, kufaka phakathi udokotela wezifo zomchamo, udokotela omusha ohlinzayo nodokotela wamathambo.