ICystic Fibrosis ingesinye sezifo ezibucayi ezihlasela kakhulu ezweni lethu. Namuhla usuku lomhlaba lwalesi sifo esingajwayelekile, futhi, ngenxa yesimo esiwubhadane, besifuna ukwazi ukuthi i-COVID-19 izithinta kanjani izingane, kanye nabantu abadala. Ngoba kubantu abane-CF, ukuthola esinye isifo, okunemiphumela ohlelweni lokuphefumula, ikakhulukazi kuyingozi.
Ukutheleleka kwe-COVID-19, lapho sisazithola sikuyo, kudala ukukhathazeka okukhethekile eqenjini lezingane, nemindeni enamalungu athintwe yiCystic Fibrosis. Ngendlela, kusukela ngoSepthemba 7 kukhona Iziguli ezingama-33 ezine-CF ne-COVID19. Kulaba bangu-10 abangenisiwe, kwabangu-33 abathelelekile, abali-11 bangaphansi kweminyaka engu-18 ubudala.
Izincomo ezijwayelekile zezingane ezine-CF
I-CF iyi- isifo esiyinkimbinkimbi, lokho kuthinta ngokuhlukile umuntu ngamunye ophethwe yiyo, ngakho-ke kungcono ukukhuluma ngqo nethimba lokunakekelwa kweCF bese ubuza noma imiphi imibuzo ethize onayo ngempilo yezingane zakho kanye nomndeni wakho.
Kunobufakazi bokuthi abantu, izingane, ezinezimo esezivele zikhona njengezifo zamaphaphu, ziqhuba a ingozi eyengeziwe yokuthola ukugula okunzima kusuka ku-COVID-19 uma kwenzeka kuthathelwana. Bobabili iSpanish Federation neNorth American Federation bakhipha imibhalo ebanzi ngoJulayi nochungechunge lwezincomo.
Njengezincomo eziyinhloko esiziqokomisayo: gcina impahla bese uhlala ekhaya ngangokunokwenzeka. Ukuzibopha. Futhi thatha izinyathelo zokuphepha zansuku zonke ukugcina ukuqhela kwakho kwabanye, ukunciphisa ukuthintana okuseduze, nokugeza izandla njalo. Esinye isincomo ukukwenza ukuzivocavoca umzimba ngaphandle, ngesikhathi sokuphumula, okungenani kathathu ngesonto. Futhi, lapho ingane ifika, ikhaya kumele lenze ukuhlanza izicathulo, ukuguqula izingubo nokuhlanzeka komuntu siqu. Hhayi eyengane kuphela kodwa neyabangane.
Zithini izibalo ngeCystic Fibrosis ne-COVID-19?
Ingane eneCystic Fibrosis ikhwehlela kaningi, uma ukuqaphela lokho indodana yakho ikhwehlela ngokuhlukile, uba nobunzima bokuphefumula noma ubuhlungu bemisipha, ngokushesha thintana nethimba elikuqaphile. Ezinye izimpawu zikhona umkhuhlane omkhulu, ukulahlekelwa kakhulu isifiso sokudla, ukuhlanza noma isifo sohudo, noma uma ulahlekelwa iphunga noma ukunambitha.
Ngokuvamile, impendulo yabantu abangenwe yi-COVID-19, abaphethwe yiCystic Fibrosis, iphendula kahle. A kufakwa amaphesenti amancane kakhulu, futhi iningi likwazile ukululama ekhaya.
Labo nezingane kanye nabantu abadala abanakho ukufakelwa kabusha futhi bathatha imishanguzo ecindezela amasosha abo omzimba ukuvimbela ukwaliwa komzimba. Basengozini enkulu yokuthola nokugula kakhulu ngenxa ye-COVID-19.
Izingane ezineCystic Fibrosis esikoleni
Ukubuyela ekilasini kuyisinqumo esinzima kubo bonke abazali ngalesi sikhathi, ikakhulukazi uma kungumfana noma intombazane eneCystic Fibrosis. Ingabe i- isinqumo sengozi, kepha futhi kunezinzuzo, uma kwenziwe kahle, kwenzelwa umfundi nomndeni. Abafana namantombazane banezidingo ezithile zenhlalo nezingokomzwelo, futhi ukufunda ubuso nobuso kubazuzisa ngokuhlanganiswa kwabo okulungile.
Esokuqala ukuthi thintana futhi ulihlole nethimba leCF Unit. Izinga lokuthinteka, isimo somtholampilo, indawo yokuhlala, izici namandla esikole kufanele kubhekelwe ukulandela imihlahlandlela esunguliwe. Sincoma wena xhumana nesikole ukwazi futhi ukuthi yiziphi izinketho abazicabange ngendodana noma indodakazi yakho.
Izincomo yilezi: amaqembu amancane ama-bubble, amakilasi angena umoya, ukujija, ukuhlanzeka ngesandla njalo emahoreni ayi-1 noma ama-2, ukuhlanza indawo okungenani ama-2 ngosuku futhi kusuka eminyakeni emi-3 eqenjini lethu ukusetshenziswa kwesifihla-buso (i-FFP2 / KN95 noma ukuhlinza kuya ngokuthi ukubekezelelana). Kepha leli su akumele lisetshenziswe emakilasini kuphela, kepha kuzo zonke izimo ingane ikhona, ezokuhamba, imihlangano yangemva kwesikole, ezokungcebeleka ...